BDMA links - CYSHN

Local and National Links

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National links

Birth Defects Program at the Centers for Disease Control and Prevention
The Birth Defects Program at CDC exists to provide leadership and support for birth defects monitoring, analysis of birth defects data, research into causes, treatment and prevention of birth defects, education about birth defects and birth defects prevention.

March of Dimes: Working together for stronger, healthier babies
This website contains information and answers about pregnancy, your baby, folic acid, prematurity, genetic disorders, birth defects and much more. The Minnesota Chapter works to improve the health of babies and support families in Minnesota.

National Birth Defects Prevention Network (NBDPN)
The NBDPN is a volunteer–based organization that addresses the issues of birth defects surveillance, research and prevention under one umbrella by maintaining a national network of state and population-based birth defects programs. The site provides information about state birth defects programs and birth defects information and data from across the United States, including information on causes and prevention of birth defects. Educational materials are available to download.

National Birth Defects Prevention Study (NBDPS)
The National Birth Defects Prevention Study is the largest study in the U.S. researching the causes of birth defects. The study began in 1996 when Congress directed the CDC to establish the Centers for Birth Defects Research and Prevention in 10 states (AR, CA, GA, IA, MA, NJ, NY, NC, TX, and UT). Currently, the Study is in its wind–down phase and will be replaced by The National Birth Defects Case Control Study, which will use the knowledge gained from the NBDPS as its foundation. The website includes information about the study design, research approaches and findings from the NBDPS.

Organization of Teratology Information Specialists (OTIS) Resources – Mother To Baby
OTIS offers a series of fact sheets on “teratogens” (exposures that are known to interfere with fetal development). The fact sheets answer frequently asked questions about exposures during pregnancy.

Local links

Environmental Public Health Tracking (EPHT) Program
This Minnesota Department of Health EPHT Program works in collaboration with state and federal partners to make environmental hazard, exposure, and health data accessible to the public to inform policy and action, and ultimately to protect public health. Adverse reproductive outcomes, including preterm birth, growth restriction, infant mortality, and infertility are available on a county basis by making queries of the EPHT interactive website.

Minnesota Organization on Fetal Alcohol Syndrome (MOFAS)
MOFAS provides FASD public awareness/prevention, diagnosis, professional education/training, intervention and family support. The MOFAS website includes both a guide and an interactive searchable directory of FASD diagnostic, intervention and family support resources available in MN.

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