High Probability Conditions
The following list of diagnosed conditions that result in automatic eligibility for Minnesota's Infant and Toddler Intervention services has been developed through a review of current literature and other state's lists of eligible conditions. Developing an exhaustive list of conditions is not practical. Therefore, the list below should be considered as examples of conditions with a high probability of resulting in a delay. If you are unsure, please view the list of actions you should take in determining eligibility if a specific condition is not listed.
The absence of a specific diagnosis or condition listed on this web page does not automatically rule out a child's eligibility status. In order to provide a definite "yes" or "no" answer, you may need to obtain additional information from the child's health care provider, as well as compile available developmental outcome information from various reputable sources. Eligibility technical assistance is available by emailing firstname.lastname@example.org.
* It is important to remember that children with conditions with a high probability of resulting in a delay are eligible for services even if the child is not currently demonstrating a need or delay.
Conditions or disorders with a high probability of resulting in a delay
|1) Chromosomal / genetic||4) Physical conditions|
|2) Neurodevelopmental||5) Sensory conditions|
|3) Prenatal / perinatal conditions||6) Social or emotional conditions|
1. Chromosomal / genetic
A. Conditions or syndromes that are likely to result in intellectual disabilities such as:
- Angelman Syndrome
- Coffin–Lowry Syndrome
- Cornelia de Lange Syndrome
- Down syndrome
- Fragile X Syndrome
- Hunter Syndrome (Mucopolysaccharidosis II, MPS II)
- Hurler Syndrome (Mucopolysaccharidosis I, MPS I)
- I–Cell Disease (Mucolipidosis II alpha/beta)
- Prader–Willi Syndrome
- Williams Syndrome
- Wolf–Hirschhorn Syndrome / 4p Deletion Syndrome
B. Conditions where life expectancy may be limited such as:
C. Certain metabolic, endocrine and hemoglobinopathies generally identified by the newborn screening program
2. Neuro–developmental disorders such as:
A. Autism Spectrum Disorders (may include Autistic Disorder, Childhood Autism, Atypical Autism, Pervasive Developmental Disorder Not Otherwise Specified, Asperger´s Disorder, or other related pervasive developmental disorders)
C. Neural Tube Defects
(NTDs – birth defects of the spine and brain) such as:
3. Certain prenatal / perinatal conditions
A. Disorders secondary to exposure to toxic substances, such as:
B. Prenatal infections such as: Cytomegalovirus (CMV)
E. Hypoxic–Ischemic Encephalopathy (HIE)
4. Physical conditions
A. Neuro–muscular disorders such as:
C. Toxic Exposures such as:Elevated blood lead level of ≥ 45 µg/dL (based on
MN Childhood Blood Lead Screening Guidelines
A child with ≥ 15 µg/dL should be automatically referred to: Minnesota Help Me Grow for a developmental evaluation.
D. Complex Health Conditions which are conditions impacting multiple organs or systems
B. Vision impairment: A diagnosed vision impairment that is not correctable with treatment, surgery, glasses or contact lenses. CDC Vision Loss Fact Sheet, English and Spanish (PDF)
6. Social or Emotional Conditions
A. Axis I conditions from the Diagnostic Classifications 0–3 including:
- Adjustment Disorders
- Anxiety Disorders of Infancy and Childhood
- Depression of Infancy and Early Childhood
- Deprivation/Maltreatment Disorder
- Disorders of Affect
- Feeding Behavior Disorders
- Mixed Disorder of Emotional Expressiveness
- Post–Traumatic Stress Disorder (PTSD)
- Prolonged Bereavement / Grief Disorder
- Regulation Disorders of Sensory Processing
- Sleep Behavior Disorder
- Disorders of Relating and Communicating
- Multisystem Developmental Disorder (MSDD)
How will I know if a condition is one that meets the eligibility criteria?
In order to help determine if a child has a condition or disorder that has a high probability of resulting in a delay, you will need the following information. You can also visit our Eligibility Decision Guidelines (birth to 3 years) webpage.
1. Obtain the name of all diagnoses, conditions or disorders from the child´s health care or mental health provider.
- Be sure to get a list of all health conditions a child has. This information will give the team a complete picture upon which to make an eligibility determination.
- Since many conditions sound similar, make sure to get an accurate spelling.
- Verbal confirmation of the diagnosis/condition/disorder from the appropriately licensed health care professional or clinic is required prior to determining eligibility.
2. Review the literature and available research in order to learn about the condition:
- e–medicine, the U.S. National Library of Medicine, National Organization of Rare Diseases (NORD), GeneReviews™ and Centers for Disease Control and Prevention are all reliable web sites for information regarding specific health conditions.
- Particularly make note of which areas of development are impacted. This will help in long–term planning.
- Note commonly associated conditions.
- Understand the variability in outcomes/impact of a specific diagnosis.
- The Minnesota Department of Health´s web site also has information about some of the more common health conditions and conditions identified through a variety of newborn screening and surveillance programs. View CYSHN´s Diseases and Conditions Identified in Children webpage.
- Look for articles/documentation of outcomes at school–age. Some conditions are very rare; finding recent studies on long–term outcomes may be challenging, but usually not impossible.
3. Solicit input from the child´s health care provider(s) to assist in establishing eligibility by using Informed Clinical Opinion independently:
- What is this child´s prognosis?
- Do you anticipate there will be an impact on development in either the short–term or long–term?
- Has this child been hospitalized frequently? Are frequent hospitalizations anticipated?
- Has this child had other complications?
Eligibility technical assistance is available by emailing email@example.com.
What does “conditions or disorders with a high probability of resulting in a delay” mean?
“High probability” means that current research findings indicate that at least 50% of children with a given condition will experience a developmental delay in one or more areas of development at school age.