High Probability Conditions
The following list of diagnosed conditions that result in automatic eligibility for Minnesota´s Infant and Toddler Intervention services has been developed through a review of current literature and other state´s lists of eligible conditions. Developing an exhaustive list of conditions is not practical. Therefore, the list below should be considered as examples of conditions with a high probability of resulting in a delay. If you are unsure, please view the list of actions you should take in determining eligibility if a specific condition is not listed.
The absence of a specific diagnosis or condition listed on this web page does not automatically rule out a child´s eligibility status. In order to provide a definite “yes” or “no” answer, you may need to obtain additional information from the child´s health care provider, as well as compile available developmental outcome information from various reputable sources. Eligibility technical assistance is available by emailing email@example.com.
* It is important to remember that children with conditions with a high probability of resulting in a delay are eligible for services even if the child is not currently demonstrating a need or delay.
Conditions or disorders with a high probability of resulting in a delay
|1) Chromosomal / genetic||4) Physical conditions|
|2) Neurodevelopmental||5) Sensory conditions|
|3) Prenatal / perinatal conditions||6) Social or emotional conditions|
1. Chromosomal / genetic
A. Conditions or syndromes that are likely to result in intellectual disabilities such as:
- Angelman Syndrome
- Coffin–Lowry Syndrome
- Cornelia de Lange Syndrome
- Down syndrome
- Fragile X Syndrome
- Hunter Syndrome (Mucopolysaccharidosis II, MPS II)
- Hurler Syndrome (Mucopolysaccharidosis I, MPS I)
- I–Cell Disease (Mucolipidosis II alpha/beta)
- Prader–Willi Syndrome
- Williams Syndrome
- Wolf–Hirschhorn Syndrome / 4p Deletion Syndrome
B. Conditions where life expectancy may be limited such as:
C. Certain metabolic, endocrine and hemoglobinopathies generally identified by the newborn screening program
2. Neuro–developmental disorders such as:
A. Autism Spectrum Disorders (may include Autistic Disorder, Childhood Autism, Atypical Autism, Pervasive Developmental Disorder Not Otherwise Specified, Asperger´s Disorder, or other related pervasive developmental disorders)
C. Neural Tube Defects
(NTDs – birth defects of the spine and brain) such as:
3. Certain prenatal / perinatal conditions
A. Disorders secondary to exposure to toxic substances, such as:
B. Prenatal infections such as: Cytomegalovirus (CMV)
E. Hypoxic–Ischemic Encephalopathy (HIE)
4. Physical conditions
A. Neuro–muscular disorders such as:
C. Toxic Exposures such as:Elevated blood lead level of ≥ 45 µg/dL (based on
MN Childhood Blood Lead Screening Guidelines
A child with ≥ 15 µg/dL should be automatically referred to:
Minnesota Help Me Grow for a developmental evaluation.
D. Complex Health Conditions which are conditions impacting multiple organs or systems
B. Vision impairment: A diagnosed vision impairment that is not correctable with treatment, surgery, glasses or contact lenses. CDC Vision Loss Fact Sheet, English and Spanish (PDF 118KB/2 pages)
6. Social or Emotional Conditions
A. Axis I conditions from the Diagnostic Classifications 0–3 including:
- Adjustment Disorders
- Anxiety Disorders of Infancy and Childhood
- Depression of Infancy and Early Childhood
- Deprivation/Maltreatment Disorder
- Disorders of Affect
- Feeding Behavior Disorders
- Mixed Disorder of Emotional Expressiveness
- Post–Traumatic Stress Disorder (PTSD)
- Prolonged Bereavement / Grief Disorder
- Regulation Disorders of Sensory Processing
- Sleep Behavior Disorder
- Disorders of Relating and Communicating
- Multisystem Developmental Disorder (MSDD)
How will I know if a condition is one that meets the eligibility criteria?
In order to help determine if a child has a condition or disorder that has a high probability of resulting in a delay, you will need the following information. You can also visit our Eligibility Decision Guidelines (birth to 3 years) webpage.
1. Obtain the name of all diagnoses, conditions or disorders from the child´s health care or mental health provider.
- Be sure to get a list of all health conditions a child has. This information will give the team a complete picture upon which to make an eligibility determination.
- Since many conditions sound similar, make sure to get an accurate spelling.
- Verbal confirmation of the diagnosis/condition/disorder from the appropriately licensed health care professional or clinic is required prior to determining eligibility.
2. Review the literature and available research in order to learn about the condition:
- e–medicine, the U.S. National Library of Medicine, National Organization of Rare Diseases (NORD), GeneReviews™ and Centers for Disease Control and Prevention are all reliable web sites for information regarding specific health conditions.
- Particularly make note of which areas of development are impacted. This will help in long–term planning.
- Note commonly associated conditions.
- Understand the variability in outcomes/impact of a specific diagnosis.
- The Minnesota Department of Health´s web site also has information about some of the more common health conditions and conditions identified through a variety of newborn screening and surveillance programs. View CYSHN´s Diseases and Conditions Identified in Children webpage.
- Look for articles/documentation of outcomes at school–age. Some conditions are very rare; finding recent studies on long–term outcomes may be challenging, but usually not impossible.
3. Solicit input from the child´s health care provider(s) to assist in establishing eligibility by using Informed Clinical Opinion independently:
- What is this child´s prognosis?
- Do you anticipate there will be an impact on development in either the short–term or long–term?
- Has this child been hospitalized frequently? Are frequent hospitalizations anticipated?
- Has this child had other complications?
Eligibility technical assistance is available by emailing firstname.lastname@example.org.
What does “conditions or disorders with a high probability of resulting in a delay” mean?
“High probability” means that current research findings indicate that at least 50% of children with a given condition will experience a developmental delay in one or more areas of development at school age.