Parent/Youth Work Group
The Minnesota Department of Health (MDH) Children & Youth with Special Health Needs Program (CYSHN)* is seeking applicants for a CYSHN Parent/Youth Work Group.
To improve population health through building the capacity of all systems that serve children and youth with special health needs and their families.
The Children and Youth with Special Health Needs Parent/Youth Work Group (hereafter referred to as Work Group) will be comprised of 8-10 parents/adults and two or three 18-26 year old youth/young adults with extensive experience with children or youth with special health needs who are recipients of health services. The Work Group members will partner in decision-making to inform the statewide CYSHN program. The Work Group will represent the CYSHN population to identify gaps, assess services available to families, and determine MDH next steps for action in better meeting needs of Minnesota families.
The Work Group will:
- Act as an advisory resource to the Children & Youth with Special Health Needs Program (CYSHN) at the Minnesota Department of Health.
- Act as a vehicle for communication between families of children with special health needs and the Minnesota Department of Health, obtaining information and feedback from community members and organizations on CYSHN priorities and initiatives.
- Provide a venue for individuals and families to provide input into policy and program development.
- Collaborate as partners and serve in a reciprocal relationship with CYSHN staff in the planning of programming.
Work Group members will be chosen in a review process that gives weight to the experience needed to provide guidance to the CYSHN program, as well as Minnesota geographic location to include state-wide representation.
In June of 2012, a Children & Youth with Special Health Needs (CYSHN) Work Group convened consisting of parents, representatives of partner organizations, local public health, and members of the Maternal & Child Health Advisory Task Force. The Work Group’s charge was to inform the statewide CYSHN program on initiatives that would improve the quality, efficiency and effectiveness of the public health role in meeting the needs of CYSHN, as well as provide direction and advice on establishing priorities and developing plans for CYSHN activities.
The CYSHN Work Group met four times in 2012 to develop a strategic plan and establish priorities to direct statewide CYSHN initiatives. The Parent/Youth Work Group will assist in implementing recommendations outlined in the CYSHN 5-year Strategic Plan.
The Work Group will represent the CYSHN population to identify gaps, assess services available to families, and determine MDH next steps for action in better meeting needs of Minnesota families. The Work Group will also report to and advise the Maternal & Child Health Task Force of priorities and assist in providing direction and guidance on developing plans and establishing priorities to meet the needs of Minnesota children with special health needs and their families in the following areas:
- creating culturally responsive programs that meet the needs of CYSHN
- building capacity of CYSHN individuals and their parents in Minnesota
- outreach activities
- identify community needs
- policy development
- planning conferences
- staff/provider training
This Work Group will be convened in January, 2014. It is anticipated that the group will meet quarterly for three years. Depending upon the work and projects being planned, the group may meet more frequently, if needed.
The Work Group will be comprised of 8-10 parents/adults and two to three 18-26 year old youth/young adults, especially individuals with extensive experience with children who have special health needs that are recipients of health services.
Membership in the group is voluntary but requires active participation and a commitment of time. Work Group members will be asked to review materials, provide comments in preparation for Work Group meetings, respond to documents and surveys, and provide feedback to the CYSHN program acting as a vehicle for gathering information from community individuals and organizations that will provide input into policy and program development.
Selection of Work Group members will be based on a review process comprising a number of criteria including:
- interest in serving as an advisor to the CYSHN program
- comfort in speaking in a group with candor
- ability to use and apply personal experience
- ability to represent individuals and families of children with special health needs
- geographic location, including state-wide representation
Participation in this Work Group will be open for new members at the beginning of each year (the second week of January), or if the number of members in the Work Group is less than eight.
If a member is unable to attend, it is that member’s responsibility to learn what happened during his or her absence. Regular attendance is expected.
Ad Hoc Workgroups
The Work Group may establish ad hoc workgroups to complete short-term projects with a specific assignment and a timeline approved by the Work Group. All ad hoc groups will report regularly to the Work Group on their progress.
Support will be available for Parent/Youth Work Group members
* Children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.