Birth Defects Work Group
The purpose for the work group is to advise MDH on the planning, implementation, evaluation and review of the Birth Defects Information system.
Next Meeting: None set at this time.
MDH Goals for the Birth Defects Program
- Monitor the occurrence of birth defects in Minnesota and describe the risks of having a birth defect (get high quality data).
- Inform health professionals and educate citizens regarding birth defects in Minnesota (emphasize primary prevention).
- Provide information for service and resource planning (link to services).
Birth Defects Work Group Tasks
- Advise on the priorities for birth defects data collection (for example, which birth defects to collect data on)
- Provide advice on case definitions, starting with NTDs and oro-facial clefts.
- Review of forms for abstracting (several templates provided in meeting packet)
- Review of cases as needed
- Provide advice on case ascertainment
- Provide advice on services and prevention activities
- Advise on data interpretation
- Advise on policy and procedures for implementation and evaluation
- Advise and participate in data dissemination and linkage to services
- Other tasks as developed with the consensus of the group
Members
Reports
Data:
- Review of Birth Defect Data Sets and Their Usefulness (PDF: 440KB/34 pages) - May 2003
- Review of Birth Defect Data Sets and Their Usefulness, Part II: Pilot Studies (PDF: 86KB/26 pages) - May 2004
Prevention and Services:
- Birth Defects Primary Prevention and Services Report (PDF: 42KB/20 pages) - March 2003
- Birth Defects Primary Prevention and Services Report, Part II: Referral & Follow-Up (PDF: 66KB/22 pages) - May 2004
Minutes
- December 15, 2008 (PDF: 32KB/4pages)
- August 14, 2007 (PDF: 40KB/7 pages)
- May 9, 2006 (PDF: 35KB/4 pages)
- May 18, 2005 (PDF: 114KB/7 pages)
- August 12, 2004 (PDF: 39KB/5 pages)
- February 26, 2004 (PDF: 28KB/5 pages)
- February 26, 2003 (PDF: 25KB/6 pages)
- May 29, 2002 (PDF: 21KB/6 pages)
- October 3, 2002 (PDF: 19KB/5 pages)
