Infant and Toddler Intervention Services

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Examples of Conditions or Disorders with a High Probability of Resulting in a Delay

The Governor's Interagency Coordinating Council and state agency staff have developed a list of diagnosed conditions that is based upon a review of current literature and other state's eligibility lists of diagnosed conditions. Developing an exhaustive list of conditions is not practical, give the rarity of so many. Therefore, the list below should be considered as examples of conditions with a high probability of resulting in a delay. If you are unsure, please view the list of actions you should take in determining eligibility if a specific condition is not listed.

The absence of a specific diagnosis or condition listed on this web page does not automatically rule out a child's eligibility status. In order to provide a definite "yes" or "no" answer, you may need to obtain additional information from the child's health care provider (informed clinical opinion), as well as compile available developmental outcome information from various reputable sources. Eligibility technical assistance is available from the MN Department of Health at 651/201-3641 or health.cyshn@state.mn.us.

There will be ongoing additions and updates made to this list, based on advancements in both the medical and early intervention fields.

* It is important to remember that children with conditions with a high probability of resulting in a delay are eligible for services even if the child is not currently demonstrating a need or delay.

1) Chromosomal/Genetic

4) Physical Conditions

2) Neurodevelopmental

5) Sensory Conditions

3) Prenatal / Perinatal Conditions

6) Social or Emotional Conditions
   
1. Chromosomal/Genetic
  A. Conditions or syndromes that are likely to result in intellectual disabilities such as
    bullet Angelman Syndrome
    bullet Coffin-Lowry Syndrome
    bullet Cornelia de Lange Syndrome
    bullet Down syndrome
    bullet Fragile X Syndrome
    bullet Hunter Syndrome (Mucopolysaccaridosis II, MPS II)
    bullet Hurler Syndrome (Mucopolysaccaridosis I, MPS I)
    bullet I-Cell Disease
    bullet Prader Willi
    bullet Williams Syndrome
    bullet Wolf-Hirschhorn / 4p Deletion Syndrome
  B. Conditions where life expectancy may be limited such as
    bullet Tay Sachs Disease
    bullet Trisomy 13 (Patau Syndrome)
    bullet Trisomy 18 (Edward Syndrome)
  C. Certain metabolic, endocrine and hemoglobinopathies generally identified by the newborn screening program
    bullet Galactosemia
    bullet Homocystinuria
    bullet Long chain fatty acid oxidation disorders
    bullet Maple Syrup Urine Disease (MSUD)
    bullet Methymalonic academia (MMA)
    bullet Phenylketonuria (PKU)
    bullet Sickle cell disease
 
2. Neuro-developmental Disorders such as
  A. Autism Spectrum Disorder
(may include Autistic Disorder, Childhood Autism, Atypical Autism, Pervasive Developmental Disorder Not Otherwise Specified, Asperger's Disorder, or other related pervasive developmental disorders)
  B. Cerebral palsy
  C. Neural tube defects such as
    bullet Encephalocele
    bullet Spina Bifida
 
3. Certain Prenatal / Perinatal Conditions
  A. Disorders secondary to exposure to toxic substances, such as
    bullet Fetal alcohol syndrome
    bullet Fetal Hydantoin syndrome
  B. Prenatal infections such as cytomegalovirus (CMV)
  C. Infants born at <1500 grams
  D. Grades III and IV intracranial hemorrhage (PVH-IVH, stroke)
  E. Hypoxic-Ischemic Encephalopathy
  F. Congenital Diaphragmatic Hernia
 
4. Physical Conditions
  A. Neuro-muscular disorders such as
    bullet Muscular dystrophies
    bullet Neonatal adrenoleukodystrophy
    bullet Spinal muscular atrophy
  B. Respiratory
    bullet Bronchopulmonary dysplasia (BPD)
  C. Toxic Exposures such as
    bullet Elevated blood lead levels
  D. Complex Health Conditions which are conditions impacting multiple organs or systems
    bullet Charge Syndrome
    bullet DiGeorge, Opitz, Velocardialfacial and Related Syndromes (22q 11.2 deletion)
    bullet Noonan Syndrome
    bullet Sacral Agenesis
  E. Musculoskeletal
    bullet Arthrogryposis multiplex congenital
    bullet Osteogenesis Imperfecta
 
5. Sensory
  A. Hearing loss as recommended by the Minnesota Early Hearing Detection and Intervention team
  B. Vision impairment: A diagnosed vision impairment that is not correctable with treatment, surgery, glasses or contact lenses
 
6. Social or Emotional Conditions
  A. Axis I conditions from the Diagnostic Classifications 0-3 including:
    bullet Adjustment Disorders
    bullet Anxiety Disorders of Infancy and Childhood
    bullet Depression of Infancy and Early Childhood
    bullet Deprivation/Maltreatment Disorder
    bullet Disorders of Affect
    bullet Feeding Behavior Disorders
    bullet Mixed Disorder of Emotional Expressiveness
    bullet Post-Traumatic Stress Disorder (PTSD)
    bullet Prolonged Bereavement / Grief Disorder
    bullet Regulation Disorders of Sensory Processing
    bullet Sleep Behavior Disorder
    bullet Disorders of Relating and Communicating
    bullet Multisystem Developmental Disorder (MSDD)

HOW WILL I KNOW IF A CONDITION IS ONE THAT MEETS THE ELIGIBILITY CRITERIA IF THE CONDITION IS NOT LISTED?

In order to help determine if a child has a condition or disorder that has a high probability of resulting in a delay, you will need the following information.

1. Obtain the name of all diagnoses, conditions or disorders from the child's health care or mental health provider.
 
  • Be sure to get a list of all health conditions a child has, since this information will give the team a complete picture upon which to make an eligibility determination.
  • Since many conditions sound similar, make sure to get an accurate spelling.
  • Verbal confirmation of the diagnosis/condition/disorder from the appropriately licensed health care professional or clinic is required prior to determining eligibility.
2. Learn about the condition.
   
3. Review the literature and available research in order to learn about the condition:
 
4. Solicit input from the health care provider (informed clinical opinion):
 
  • What is this child's prognosis?
  • Do you anticipate there will be an impact on development in either the short-term or long-term?
  • Has this child been hospitalized frequently? Are frequent hospitalizations anticipated?
  • Has this child had other complications?

Eligibility technical assistance is available from the MN Department of Health at 651/201-3641 or health.cyshn@state.mn.us.

Definitions and Frequently Asked Questions:

bullet What does "Conditions or disorders with a high probability of resulting in a delay" mean?
  “High probability” means that current research findings indicate that at least 50% of children with a given condition will experience a developmental delay in one or more areas of development (five areas are listed above) at school age.
   
bullet What does "Informed Clinical Opinion" mean?
  "Informed Clinical Opinion makes use of qualitative and quantitative information to assist in forming a determination of eligibility regarding difficult-to-measure aspects of current developmental status and the potential need for early intervention. Appropriate training, previous experience conducting evaluation, sensitivity to cultural needs, and the ability to elicit and include family perceptions are all important elements of Informed Clinical Opinion. In using Informed Clinical Opinion, the individual evaluator and the multidisciplinary team seek to answer the question “What are the child's abilities and needs within his/her natural environment?" (For more information, see National Early Childhood Technical Assistance Center - May, 2002 [PDF: 4 pages / 49KB])

Other resources in Minnesota for early intervention services:

Minnesota Department of Education - Early Learning Services

Updated Wednesday, 27-Feb-2013 15:50:46 CST