Children and Youth with Special Health Needs (CYSHN)
Other Sites of Interest
Attention: by selecting any of the links below you may be leaving the Minnesota Department of Health Web site. These links do not imply endorsement of a particular commercial product or service by Children and Youth with Special Health Needs or the Minnesota Department of Health.
About Our Kids.org The New York University Child Study Center's multi-disciplinary team of professionals is dedicated to advancing the field of mental health in children and their families through evidence-based practice, science and education.
American Academy of Pediatrics Links to information on Medical Home, managed care and children with special health needs.
Centers for Disease Control and Prevention (CDC) The CDC works to identify the causes of birth defects and developmental disabilities, help children to develop and reach their full potential, and promote health and well-being among people of all ages with disabilities. CDC also works to prevent injuries, such as traumatic brain injury, and their resulting disabilities.
Center for Inclusive Child Care (CICC) A comprehensive resource network for promoting and supporting inclusive early childhood and school-age programs and providers. This network provides leadership, administrative support, training, and consultation to early care and education providers, school-age care providers, parents, and the professionals who support providers and parents of children with special needs.
Children's Mental Health staff at the Minnesota Department of Human Services help children and adolescents with severe emotional disturbance. They work with counties and Children's Mental Health Collaboratives to establish a comprehensive, integrated, and accountable mental health delivery system that meets the mental health needs of children and youth and helps people become as self-sufficient as possible.
Children's Mental Health Collaboratives were established by the 1993 Minnesota Legislature in recognition that children with severe emotional disturbances or who are at risk of such disturbances often require services from multiple service systems. No single agency can assume the responsibility for the provision of services and in order for the services provided to be effective, non-duplicative and non-fragmented, a network of child-serving agencies in which the family was a full partner was needed.
Directory of State Title V Children with Special Health Care Needs (CSHCN) Programs Every state and the District of Columbia has a Title V Program for Children with Special Health Care Needs. The Maternal and Child Health Bureau, has developed a directory of Title V, Maternal and Child Health (MCH) and Children with Special Health Care Needs (CSHCN) program directors.
Disability Minnesota provides a single entry point to over 100 Minnesota state agency programs, products, and services that are devoted to the range of disability issues. It also provides access to laws, statutes, and regulations in pertinent disability-related areas.
Disability.gov a federal web site that contains disability-related resources on programs, services, laws and regulations to help people with disabilities lead full, independent lives. Visitors can find critical information on a variety of topics, including benefits, civil rights, community life, education, emergency preparedness, employment, housing, health, technology and transportation.
Family Village Family Village is a site produced and maintained by the Waisman Center at the University of Wisconsin, Madison. The site offers information for parents of children with disabilities. Contains numerous links to resources on diagnoses, adaptive products, education, disability-related media and literature and more. Also includes discussion and chat rooms.
Family Voices of Minnesota Family Voices of Minnesota is a grass roots family organization that aims to achieve family-centered care for all children, youth and young adults with special health care needs and/or disabilities. Through our state and national networks of families and providers, we provide tools that build partnerships among professionals, patients and families, and serve as a trusted resource for information to improve health system policies.
Genetic Alliance The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics
Healthfinder.gov Healthfinder is an award-winning Federal Web site for consumers, developed by the United States Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder ® has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder links to carefully selected information and Web sites from over 1,500 health-related organizations.
Healthy and Ready to Work National Center Health Impacts All Aspects of Life. Success in the classroom, within the community, and on the job requires that young people with special health care needs stay healthy. To stay healthy, young people need an understanding of their health and to participate in their health care decisions. The Healthy and Ready to Work National Center provides information and connections to health and transition expertise nationwide - from those in the know, doing the work and living it!
HealthyChildren.org is the only parenting Web site backed by 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults (birth to 21 years). Information available includes developmental stages, safety, nutrition, parenting challenges, emotional wellness, health conditions and featured questions/answers from pediatricians. There is also information regarding the American Academy of Pediatrics many programs and activities, policies and guidelines, publications and other child health resources.
Internet Resources for Special Children (IRSC) The IRSC web site is dedicated to communicating information relating to the needs of children with disABILITIES on a global basis in order to: Provide valuable information for parents, family members, caregivers, friends, educators, and medical professionals who interact with children who have disabilities; Improve the environment for children with disabilities; Create positive changes and enhance public awareness and knowledge of children with disabilities; and act as a central starting point for information and resources.
KIDS Count Minnesota provides county-by county assessment of the condition of Minnesota's children. Minnesota KIDS COUNT releases periodic reports and an annual databook to provide a statistical profile Minnesota's children and suggestions for action on their behalf. Minnesota KIDS COUNT is a joint project of the Children's Defense Fund-Minnesota and Congregations Concerned for Children-Child Advocacy Network at the Joint Religious Legislative Coalition.
Minnesota Association for Children's Mental Health (MACMH) The Minnesota Association for Children's Mental Health (MACMH) began in 1989 as a small group of parents concerned about children with mental health disorders. Driven by the challenges of raising a child with one of the least understood and most stigmatized disabilities, these parents met regularly, defined their mission, and established a formal board of directors. A modest federal grant allowed them to hire a coordinator who began writing publications, organizing conferences and workshops, and responding to phone calls from parents seeking information about services and resources for their children.
MACMH produces a variety of publications that help parents and professionals better understand the importance of children's mental health including an interactive web-based bully prevention curriculum for grades K-6.
Minnesota Comprehensive Health Association (MCHA) MCHA was established in 1976 by the Minnesota Legislature to offer policies of individual health insurance to Minnesota residents who have been turned down for health insurance by the private market, due to preexisting health conditions. MCHA sometimes referred to as Minnesota's "high risk pool" for health insurance or health insurance of last resort.
Minnesota Council on Disability The mission of The Minnesota State Council on Disability is to expand opportunities for all children and adults with a disability throughout Minnesota, and to advocate for policies and programs which will promote the independence of children and adults with disabilities and protect their right to participate fully in society.
Minnesota Department of Education The Minnesota Department of Education works to help communities to measurably improve the well-being of children through programs that focus on education, community services, prevention, and the preparation of young people for the world of work.
Minnesota Department of Health - Mental Health and Suicide Prevention The Minnesota Department of Health promotes mental health through a number of activities including mental health promotion policy and practice development, suicide prevention, and mental health and emergency preparedness planning.
Minnesota Department of Human Services Contains information on Minnesota Health Care Programs (MHCP) maintained by the department of Human Services. This includes programs such as MinnesotaCare, Medical Assistance (MA), MA for Employed Persons with Disabilities, MA for Persons who are blind or disabled. A MHCP Provider Directory is also available to help locate health care providers that serve fee-for-service MHCP clients
Minnesota Governor's Council on Developmental Disabilities The mission of the Minnesota Governor's Council on Developmental Disabilities (GCDD) is to work toward assuring that people with developmental disabilities receive the necessary support: to achieve increased independence, productivity, self determination, integration and inclusion (IPSII) into the community.
Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) A statewide source for training, information, resources and support for Fetal Alcohol Spectrum Disorders (FASD).
Minnesota Parents Know A resource filled with trusted parenting information, resources and activities to help your children grow, develop and learn from birth through high school.
Minnesota School Nursing Toolkit Easy access to research, practice guidelines and standards, and Minnesota-specific school nursing resources.
Minnesota STAR (A System of Technology to Achieve Results) Directory of Funding Resources for Assistive Technology in Minnesota: This database, produced by the Minnesota STAR Program, identifies statewide and national resources that provide funding for, or loans of, assistive technology.
Minnesota System of Interagency Coordination (MnSIC) MnSIC provides information and resources to anyone involved with the design and implementation of an interagency coordinated system for improving and delivering services to children and youth with disabilities birth through age 21 and their families. This specifically includes those working within agencies and organizations assisting with the development of the MnSIC as required by our Minnesota state mandate.
NAMI (National Alliance on Mental Illness) of Minnesota a non-profit organization dedicated to improving the lives of adults and children with mental illness and their families. NAMI Minnesota offers education, support and advocacy. NAMI Minnesota vigorously promotes the development of community mental health programs and services, improved access to services, increased opportunities for recovery, reduced stigma and discrimination, and increased public understanding of mental illness.
The National Center of Medical Home Initiatives for Children with Special Health Care Needs provides support to physicians, families, and other medical and non-medical providers who care for children with special needs to that they have access to a medical home.
National Information Center for Children and Youth with Disabilities (NICHCY) A national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Its special focus is children and youth (birth to age 22).
PACER (Parent Advocacy Coalition for Educational Rights) Center Provides workshops, one to one help, advocacy, and written information to families of children and young adults with all disabilities. PACER's programs help parents become informed and effective representatives for their children in childhood, school-age and vocational settings. One PACER project provides a central source for families of children and young adults with disabilities to obtain support, advocacy, and information about the health care system.
Services for the Blind and Visually Impaired Minnesota Department of Employment and Economic Development (DEED), fosters the achievement of vocational and personal independence by persons of all ages who are blind or visually impaired. Their services are available to anyone in Minnesota who has a vision loss that creates a barrier to their vocational or personal independence.
Social Security Administration Contains links to broad information including disability benefits and benefits related to children with special health care needs.
STOMP (Specialized Training of Military Parents) With a population of 1.5 million active duty military members, each day around the globe, there are an estimated 540,000 active duty sponsors each caring for a family member with special medical or educational needs. STOMP is the only National Parent Training and Information Center for military families providing support and advice to military parents without regard of the type of medical condition their child has.
Vocational Rehabilitation Services Minnesota Department of Employment and Economic Development (DEED), helps people with disabilities to achieve their employment and independent living goals.