Children and Youth with Special Health Needs (CYSHN)
Quotes from Participants of the Minnesota Medical Home Collaborative
| “Because we always have Amanda’s care plan with us the specialist was able to diagnose the problem and give us a game plan right then and there, otherwise it would have taken days!”
Marion (Amanda’s mom) |
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“We have seen many specialists all across Minnesota, before Medical Home, coordinating them was a challenge.”
Jenn (Faith & Hope’s mom) |
| “Doctor Mary has given her direct line and pager number to the families in the Medical Home project…” “being able to speak to her or her nurse directly avoids unnecessary trips to the clinic.”
Sherry (Conner’s mom) |
| “How could I ensure the best outcome for my son? An Emergency Care Plan was the perfect solution.
It is in his medical record, at school and in his backpack… now I can feel confident giving Cody some independence”. Claire (Cody’s mom) |
| “The one thing that has helped us is having a care plan in place, that way when he sees a new specialist; it saves us the hassle of telling “Bjorn’s story” all over again. We can just hand the care plan to them and it lists all of the procedures that Bjorn has had and all the medications that Bjorn is on.” Julie (Bjorn’s mom) |
| “Having access to longer appointment times for the complex children is not only beneficial for the family but also for the physician because they can give a quality visit without having to run behind the rest of the day.” “The clinic has also gotten a handicap accessible door, and a wheelchair scale which have made our visits to the clinic less stressful and more comfortable.” Ashley (Camerynn’s mom) |
| “We have a care plan that is always with us, and the hospital and clinic are aware of the special needs and openly give Miriam that much needed “extra” time and gentleness. All these little changes are making a significant difference not only for Miriam, but for our family.” Jennifer (Miriam’s mom) |
| “Medical Home is such a great concept, and for parents to have a say in their child’s healthcare is such an empowering feeling!” Ashley (Parent Partner) |
“I personally have found that a small percentage of my patients take up a disproportionately large percentage of my time, try as I might, I have always struggled to do a good job with their care. Medical Home has helped me greatly - both to manage my schedule, and provide better care!” Gordon Harvieux, MD
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“The Medical Home Project is bringing strength, faith in the medical community and hope in what can be possible. Miriam has spent many days in hospitals, at appointments and innumerable hours in therapies and with “ologists. The Medical Home Project is making these times smoother in transitions, appointments easier to attend for her, and a constant support for the family on the “what next” in Medical care for Miriam. Jennifer, (Miriam's Mom) |
