Children and Youth with Special Health Needs (CYSHN)
Data and Reports
FEDERAL TITLE V MATERNAL AND CHILD HEALTH
BUREAU PROGRAM REQUIREMENTS
Every five years every Federal Title V Maternal and Child Health program (the federal program that governs the Children and Youth with Special Health Needs Program) must undertake a comprehensive needs assessment:
- to identify state Maternal and Child Health priorities for the next five years
- to arrange programmatic and policy activity around these priorities
- to develop state performance measures to monitor the success of their efforts
The Children and Youth with Special Health Needs and Maternal and Child Health Sections developed Fact Sheets outlining chosen priority issues within Minnesota for the Block Grant Needs Assessment reporting requirement. The priority issues cover the three required population groups: children and adolescents; children and youth with special health needs; pregnant women, mothers, and infants. They are a good source of information and will provide direction and guidance to our Maternal and Child Health (MCH) activities for the next five years.
Title V Maternal and Child Health 2010 Needs Assessment Fact Sheets
DATA SITES
Birth Defects Information: Effective March of 2005, the State of Minnesota statutory language (MS144.2215-2219) authorized the Minnesota Department of Health (MDH) to collect birth defect information. Annual reports give updates on the data collected as well as other program activities.
http://www.health.state.mn.us/divs/eh/birthdefects/reports/index.html
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Minnesota County Health Tables: The Minnesota County Health Tables is a compilation of public health data for the State of Minnesota and its 87 counties. Select the year of the information you want to display, Information on Children and Youth with Special Health Needs is located in the Maternal and Child Health Section.
Topics Covered: Information on Children and Youth with Special Health Needs is located in the Maternal and Child Health Section. It includes children on SSI and TEFRA, participation in early intervention for young children with disabilities, and synthetic estimates based on Minnesota results of the National Children with Special Health Care Need Survey. Special Education participation is in the demographics table.
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Minnesota Student Survey: The Minnesota Student Survey provides a comprehensive picture of Minnesota youth by asking questions about school, activities, and health. It asks specifically about behaviors that put young people at risk: alcohol, tobacco, and other drug abuse; violence; and sexual activity; and also about adolescents' perspectives on the positive and negative aspects of their lives. Responses to these questions can be used by educators, parents, communities, and youth themselves to identify the strengths of young people and to respond to their needs and concerns.
The following is a data table of the responses to the Minnesota Student Survey from those children/youth who self identified themselves as having a mental or physical condition or other health problem that has lasted at least 12 months.
Chemical Use and Mental Health Disparities in Youth with Chronic Illness and Disabilities
Link to more Minnesota Student Survey data/information at the the Minnesota Department of Human Services web site.
National Survey of Children with Special Health Care Needs Interactive Database:The National Survey of Children and Youth with Special Health Care Needs (CYSHCN) provides information about CYSHCN in all 50 States and the District of Columbia. In each state, telephone interviewers screened at least 3,000 households with children to identify CYSHCN. In-depth interviews were conducted with the parents of 750 CYSHCN per state. It is sponsored by the Maternal and Child Health Bureau, U.S. Department of Health and Human Services. The National Center for Health Statistics of the Centers for Disease Control and Prevention oversaw the sampling and telephone interviews for the National Survey of CSHCN. This survey is also know as The State and Local Area Integrated Telephone Survey (SLAITS)
Topics Covered: Screening for Special Health Care Needs, Child Health and Functional Status, Access to Care - Use of Services and Unmet Needs, Care Coordination, Satisfaction with Care Family Centeredness of Child's Care, Health Insurance, Adequacy of Health Care Coverage, Impact on the Family, Household Income, Medicaid/S-CHIP Knowledge and Experience, Utilization and Barriers to Care Questions for Low-Income/Uninsured Children without Special Health Care Needs.
The National Survey of Children's Health 2003 Interactive Database: The National Survey of Children's Health provides a broad range of information about children's health and well-being collected in a manner that allows comparisons among states as well as nationally. A total of 102,353 surveys completed nationally for children between the ages of 0-17 years. Between 1,483-2,241 surveys collected per state.
Topics Covered: Demographics, Child's Health and Functional Status, Health Insurance Coverage, Health Care Access and Utilization, Medical Home, Early Childhood (0-5 years), Middle Childhood and Adolescence (6-17 years), Family Functioning, Parental Health, Neighborhood Characteristics.
Quick Health Data Online Interactive Database: The system provides state- and county-level data for all 50 states, the District of Columbia, and US territories and possessions. Data are available by gender, race and ethnicity and come from a variety of national and state sources.
Topics Covered: The system is organized into eleven main categories, including demographics, mortality, natality, health provider availability, reproductive health, violence, prevention, disease and mental health. Within each main category, there are numerous subcategories.
- The Land Management Information System (LMIC) has
created a series of mapping modules based on an in-depth analysis
of the 2000 Census data. This analysis includes information that
is categorized by disability, age, and employment status. The mapping
modules allow users to create customized maps and data tables that
can be included in documents, reports, or grant proposals. Create
a map by selecting the type of map, sex, disability and sub category.
http://www.lmic.state.mn.us/datanetweb/php/census2000/disability.php
Transition to Adulthood: In the summer of 2010 Children and Youth with Special Health Needs developed a 2 page fact sheet to provide a general overview describing the size of the problem, seriousness, interventions and status of the issue.
Youth with Special Health Needs Transition to Adulthood Fact Sheet (PDF: 2 pages / 43KB)
Minnesota's Medical Home Learning Collaborative - Final Report: Between 2004 and 2009, 36 teams from medical practices throughout Minnesota participated in the Minnesota Medical Home Learning Collaborative. Through the Learning Collaborative and support from Minnesota Department of Health staff and consultants, the practice teams focused on quality improvement and implementing Medical Home. This final report describes both the process and the outcomes of these efforts.
Minnesota's Medical Home Learning Collaborative - Final Report (PDF: 136 pages / 870KB)
Follow Along Program (FAP) Annual Reports: The Follow Along Program (FAP) provides periodic monitoring and screening of infants and toddlers at risk for health, social emotional or developmental problems to ensure early identification, help, and services. The Follow Along Program is a core public health, population based service which seeks to negate (primary prevention) or impede the progression (secondary prevention) of risk factors for health, social emotional or developmental issues in children birth to 3.
Perceptions and Expectations of Youth with Disabilities: The National Longitudinal Transition Study-2 (NLTS2), funded by the National Center for Special Education Research at the Institute of Education Sciences, U.S. Department of Education, was initiated in 2001 to provide a national picture of the characteristics and experiences of youth with disabilities, including their perceptions of themselves, their schooling, their personal relationships, and their hopes for the future. This report presents findings drawn from the first time data were collected directly from youth on these topics; they were ages 15 through 19 at the time (2003).
Perceptions and Expectations of Youth with Disabilities (August 2007)
Minnesota Disability Profile: An Analysis of 2000 Census Data (January 2007)The presence of certain disabilities is one of the topics included in the census. Disabilities are not covered in depth, but the large sample of respondents provided by the census allows for detailed analysis that might not be possible with other surveys. The question this study seeks to answer is: What are the demographic characteristics and the economic situations of people with disabilities in Minnesota?The 2000 U.S. census asks about six different kinds of disabilities. Four questions refer to persons five years old or older, and two refer to persons sixteen years old or older. All questions require a simple “Yes” or “No” answer. No data was collected on children under 5 years of age.
Minnesota Disability Profile: An Analysis of 2000 Census Data
A Profile of Children with Disabilities Receiving SSI: Highlights from the National Survey of SSI Children with Families from Social Security Bulletin, Vol. 66 No. 2 (released May 2006) This article, based on interviews from the National Survey of SSI Children and Families conducted between July 2001 and June 2002, presents a profile of children under the age of 18 who were receiving support from the Supplemental Security Income program. The topics highlighted provide information of SSI children with disabilities and their families not available from administrative records, including demographic characteristics, income and assets, perceived health and disabilities, and health care utilization. While virtually every child in the SSI program is covered by some form of health insurance, primarily Medicaid, the data indicate substantial heterogeneity on other variables. This is true on many different dimensions, such as the perceived severity of the child's disabling conditions, health care utilization and service needs, the presence of other family members with disabilities, family demographics, and access to non-SSI sources of incomes. This document is available in the following formats: HTML PDF (28 pages / 354 KB)
Other Data/Reports Available at the Minnesota Department of Health You May be Interested in:
- Asthma Data: http://www.health.state.mn.us/divs/hpcd/cdee/asthma/Research.html
- Diabetes Data: http://www.health.state.mn.us/diabetes/data/index.html
- Minnesota Guidelines for Medication Administration in Schools - May 2005 These guidelines provide a uniform framework for safely administering prescription and nonprescription medications to students in schools which ultimately helps enhance attendance and reduces a potential barrier to learning. The guidelines are intended for use by school districts, school boards, principals, health educators, parents, students, school nurses and school paraprofessionals.
- Office of Rural Health and Primary Care: Reports and Issue Briefs
