minnesota newborn screening program

Events

Events

June 29, 2013

Down on the Farm PKU Family Picnic
The Minnesota PKU Foundation will be hosting a Family Picnic on June 29, 2013 for PKU families and friends. The fun-filled day will include horse and buggy rides, hay rides, a burger bar (PKU and non-PKU), bonfire with s’mores, a tour of the Milking Facility and plenty of outdoor fun. Bring the kids and enjoy a day of fun, food, and families!

Location: Boesl Family Farm, Brandon, MN 56315
Date: Saturday June 29, 2013
Time: 12:00 pm – 9:00 pm

For more information or to register for this event email Julie and Curt Boesl at snowser@hotmail.com or go to the Down on the Farm Family Picnic Web site.

Down on the Farm Family Picnic

April 6, 2013

The Minnesota PKU Foundation is excited to announce its upcoming event entitled Spring “Phe”ver – A day of education on PKU topics. This free event will include discussions on topics such as bone health in PKU, low protein cooking, mental health in PKU, patient stories and much more. Parents are welcome to bring their children (ages 5-12 years with PKU) as there will be a children’s program offered by the Child Family Life Specialists from Discovery/Explorer Clinics.

Location: Continuing Education and Conference Center, University of Minnesota, St. Paul Campus
Date: Saturday April 6, 2013
Time: 8 am – 3 pm (registration and breakfast from 8 am – 9 am, lunch will be provided)

An RSVP is requested by Monday, March 25, 2013. Please send an email to jbock1@fairview.org or call 612-273-6867 and indicate the number of children that will be attending the children’s program and also the number of non-PKU and PKU lunches required for your family/group.

Spring "Phe"ver day of education

March 4, 2013

Parents or guardians of a child (birth to 18 years) diagnosed with a genetic condition are invited to participate in a free training on care coordination offered by the Region 4 Genetics Collaborative. This training will provide parents with the skills, knowledge and resources they need to coordinate care for children with complex needs.

Location: Pacer Center, Bloomington, MN
Date: Monday, March 4, 2013
Time: 8:30 am – 5:30 pm (lunch will be provided)

For more information and details of how to apply for this training, please see the “Learn How to Coordinate Care for your Child” flyer below or contact Kristen Hawkins at 517-324-7396.

Learn How to Coordinate Care for your Child (PDF: 45KB/1 page)

August 9, 2012

The MDH Newborn Screening Program Advisory Committee will hold its next meeting:
Thursday, August 9, 2012
1:00 – 4:00 p.m.
Harold E Stassen Department of Revenue Building
Conference Room 2000
600 Robert Street North
Saint Paul, MN 55101

This meeting is open to the public.

(Published July 10, 2012)

April 24, 2012

The MDH Newborn Screening Program Advisory Committee will hold its next meeting:
Tuesday, April 24, 2012
1:00 – 4:00 p.m.
Orville L. Freeman State Office Building
625 Robert Street North
Saint Paul, MN 55101

This meeting is open to the public. Visitors must sign in at the Freeman Building security desk before being escorted to the meeting room.

(Published October 7, 2011)

October 4, 2011

The MDH Newborn Screening Program Advisory Committee will meet by teleconference and WebEx from 1:00 – 4:00 P.M. on October 4, 2011. This meeting is open to the public. If you would like to participate via WebEx please contact Tony Steyermark at tony.steyermark@state.mn.us by 3:00 p.m. Monday, October 3. You may attend in person. The WebEx meeting is hosted at the Public Health Laboratory. Upon your arrival please register with Security at the Freeman Building and you will be escorted to the meeting host site.

Advisory Meeting for the Minnesota Department of Health - Newborn Screening Program Booklet (PDF: 4MB/175 pages)
Background material supporting the agenda

Newborn Screening for Critical Congenital Heart Disease (PDF: 497KB/34 pages)

Update on Screening for Congenital CMV Infection (PDF: 1.42MB/40 pages)

Map to the Freeman Building

(Published September 26, 2011)

Ongoing, 2011

Great Strides is the Cystic Fibrosis Foundation’s largest fund-raising event. For further information on the 14 opportunities for healthy, family friendly walks in Minnesota visit the Cystic Fibrosis Foundation Web site.

Cystic Fibrosis Foundation - Great Strides Web site

(Published January 12, 2011)

Past Events

Updated Thursday, 14-Mar-2013 11:44:56 CDT