minnesota newborn screening programPast Events |
Past Events
April 6, 2013
The Minnesota PKU Foundation is excited to announce its upcoming event entitled Spring “Phe”ver – A day of education on PKU topics. This free event will include discussions on topics such as bone health in PKU, low protein cooking, mental health in PKU, patient stories and much more. Parents are welcome to bring their children (ages 5-12 years with PKU) as there will be a children’s program offered by the Child Family Life Specialists from Discovery/Explorer Clinics.
Location: Continuing Education and Conference Center, University of Minnesota, St. Paul Campus
Date: Saturday April 6, 2013
Time: 8 am – 3 pm (registration and breakfast from 8 am – 9 am, lunch will be provided)An RSVP is requested by Monday, March 25, 2013. Please send an email to jbock1@fairview.org or call 612-273-6867 and indicate the number of children that will be attending the children’s program and also the number of non-PKU and PKU lunches required for your family/group.
March 4, 2013
Parents or guardians of a child (birth to 18 years) diagnosed with a genetic condition are invited to participate in a free training on care coordination offered by the Region 4 Genetics Collaborative. This training will provide parents with the skills, knowledge and resources they need to coordinate care for children with complex needs.
Location: Pacer Center, Bloomington, MN
Date: Monday, March 4, 2013
Time: 8:30 am – 5:30 pm (lunch will be provided)For more information and details of how to apply for this training, please see the “Learn How to Coordinate Care for your Child” flyer below or contact Kristen Hawkins at 517-324-7396.
Learn How to Coordinate Care for your Child (PDF: 45KB/1 page)
August 9, 2012
The MDH Newborn Screening Program Advisory Committee will hold its next meeting:
Thursday, August 9, 2012
1:00 – 4:00 p.m.
Harold E Stassen Department of Revenue Building
Conference Room 2000
600 Robert Street North
Saint Paul, MN 55101
This meeting is open to the public.(Published July 10, 2012)
April 24, 2012
The MDH Newborn Screening Program Advisory Committee will hold its next meeting:
Tuesday, April 24, 2012
1:00 – 4:00 p.m.
Orville L. Freeman State Office Building
625 Robert Street North
Saint Paul, MN 55101
This meeting is open to the public. Visitors must sign in at the Freeman Building security desk before being escorted to the meeting room.(Published October 7, 2011)
October 4, 2011
The MDH Newborn Screening Program Advisory Committee will meet by teleconference and WebEx from 1:00 – 4:00 P.M. on October 4, 2011. This meeting is open to the public. If you would like to participate via WebEx please contact Tony Steyermark at tony.steyermark@state.mn.us by 3:00 p.m. Monday, October 3. You may attend in person. The WebEx meeting is hosted at the Public Health Laboratory. Upon your arrival please register with Security at the Freeman Building and you will be escorted to the meeting host site.Advisory Meeting for the Minnesota Department of Health - Newborn Screening Program Booklet (PDF: 4MB/175 pages)
Background material supporting the agendaNewborn Screening for Critical Congenital Heart Disease (PDF: 497KB/34 pages)
Update on Screening for Congenital CMV Infection (PDF: 1.42MB/40 pages)
(Published September 26, 2011)
Ongoing, 2011
Great Strides is the Cystic Fibrosis Foundation’s largest fund-raising event. For further information on the 14 opportunities for healthy, family friendly walks in Minnesota visit the Cystic Fibrosis Foundation Web site.Cystic Fibrosis Foundation - Great Strides Web site
(Published January 12, 2011)
September 15, 2011
PACER Center is offering a free workshop for parents on Section 504 and children with disabilities or health care needs. Many children identified by newborn screening are eligible for services under this law. The program will be presented from 6:30 to 9:00 p.m. in Bloomginton.
PACER Section 504 Workshop (PDF: 2 pages)(Published September 12, 2011)
May 20-22, 2011
A weekend retreat for moms of children who are deaf or Hard of Hearing is planned for May 20-22. Mothers of children from newborn on up are invited to a weekend of relaxation, discussion, great food, and fun activities at Confidence Learning Center just north of Brainerd. More information is available from Emily at emily@dreamsandinspirations.com - Camp Director at Dreams and Inspirations.
May 3, 2011
The MDH Newborn Screening Program Advisory Committee will hold its next meeting:
Tuesday, May 3, 2011
1:00 – 3:30 p.m.
Rooms B144/B145
Orville L. Freeman State Office Building
625 Robert Street North
Saint Paul, MN 55101This meeting is open to the public. Visitors must sign in at the Freeman Building security desk before being escorted to the meeting room.
Driving directions to Freeman Building
Information regarding public parking at the Capitol Complex(Published April 29, 2011)
April 12, 2011
Parents of children with newly recognized hearing loss are invited to meet with experts from the University of Minnesota on April 12th to discuss next steps in the process. Parents can participate in person or over the internet.
Minnesota Hands and Voices - Next Steps for Families w/Children Newly Identified w/Hearing Loss (PDF: 1 page)
March 6 & 7, 2011
Plan to join more than 250 families and professionals interested in early hearing detection and intervention from across Minnesota and bordering states at the 2011 Minnesota Early Hearing Detection and Intervention (EHDI) Summit on Sunday, March 6 and Monday, March 7, 2011.Minnesota has made great strides in building strong connections for families of children who are deaf or hard of hearing. The Summit will provide an opportunity to share best practices in newborn hearing screening, identification, and intervention services available to infants/young children identified with hearing loss and identify areas for improvement.
October 5, 2010
The MDH Newborn Screening Program Advisory Committee will hold its next meeting:
October 5, 2010
1:00 – 4:00 p.m.
Rooms B144/B145
Orville L. Freeman State Office Building
625 Robert Street North
Saint Paul, MN 55101This meeting is open to the public. Visitors must sign in at the Freeman Building security desk before being escorted to the meeting room.
Driving directions to Freeman Building
Information regarding public parking at the Capitol Complex(Published September 14, 2010)
September 16, 2010
The Minnesota PKU Foundation supports research to find new treatments for Phenylketonuria, an inherited condition that leaves the body unable to process phenylalanine an essential amino acid. The buildup of phenylalanine can cause severe developmental problems. MN PKU Foundation also provides medical support to people who were not diagnosed in time to prevent long term problems.“Puttin' for PKU” is an 18-hole scramble tournament Thursday, September 16th at the Ridges at Sand Creek golf course in Jordan. The $130 cost includes golf, cart, box lunch, and prime rib dinner. Diners-only pay $45.
Minnesota PKU Foundation - Puttin' for PKU Web site
(Published September 1, 2010)
August 22, 2010
Join the fun at St. Paul Saints Family PKU Day August 22, 2010 in St. Paul, MN!Minnesota PKU Foundation - Summer Picnic at the St. Paul Saints
(Published August 3, 2010)
August 18, 2010
The Minnesota Newborn Hearing Screening Advisory Committee will hold its next meeting:
August 18, 2010
1:00 - 4:00 p.m.
Mississippi Room, Snelling Office Park
1645 Energy Park Drive, St. Paul, MNMeetings are open to the public. Parking is available.
(Published August 17, 2010)
July 22 - 24, 2010
The National Galactosemia Conference will be held right here in Minnesota from July 22-24. Lots of information about the exciting gathering is available from Parents of Galactosemic Children Web site.Parents of Galactosemic Children Web site
(Published April 15, 2010)
July 17, 2010
Minnesota PKU Foundation Rally and Walk
The Minnesota PKU Foundation is sponsoring a Motorcycle Rally, 5K Fun Run, and Walk for PKU on July 17, 2010 in Winthrop, MN. Further information is available at the Minnesota PKU Foundation.
July 17, 2010
Breathe Easy Music Fest benefiting the cystic fibrosis foundation
Music, Food, and Fun for the Whole Family
Lake Elmo, MN
May 19, 2010
The Minnesota Newborn Hearing Screening Advisory Committee will hold its next meeting:
May 19, 2010
1:00 - 4:00 p.m.
Mississippi Room, Snelling Office Park
1645 Energy Park Drive, St. Paul, MN
Meetings are open to the public. Parking is available.
Snelling Office Park map(Published April 19, 2010)
May 15, 2010
PKU morning out
May 15, 2010
10:00 a.m. - 12:00 p.m.
Parents and children with PKU will meet in French Park for discussions of summer food while the little ones play. More information is available on the Minnesota PKU Foundation website.
Minnesota PKU Foundation website(Published May 12, 2010)
May 13 - 14, 2010
The 21st meeting of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) will take place on May 13, 2010 from 8:30 a.m. to 5:30 p.m. and May 14, 2010, 8:30 a.m. to 3:30 p.m. The meeting is open to the public with attendance limited to space availability and will be held at the Renaissance Washington, DC Dupont Circle Hotel, 1143 New Hampshire Avenue, N.W., Washington, DC 20037.The meeting will be web cast. Information on how to access the webcast will be available one week prior to the meeting, May 6, 2010.
Information on webcastThe meeting will include: (1) a presentation of the External Review Workgroup’s final report on the nomination of Hemoglobin H disease to the Advisory Committee’s recommended uniform screening panel; (2) presentations related to the system, information, and technology needs of newborn screening programs; (3) an update on the report being developed by the Sickle Cell Disease Carrier Screening workgroup; and (4) presentations on the continued work and reports of the Advisory Committee’s subcommittees on laboratory standards and procedures, follow-up and treatment, and education and training. Proposed Agenda items are subject to change as priorities dictate.
Meeting Agenda, Committee Roster and Charter, presentations, and meeting materials are at Advisory Committee’s Web site.
Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children Website(Published April 19, 2010)
April 25, 2010
The Minnesota Chapter of the March of Dimes sponsors the March for Babies from cities all the way from Grand Rapids to Fairmont during April and May. Visit the March of Dimes website for information on the marches in Minneapolis and St Paul on April 25, 2010 as well as statewide information on this fund-raising opportunity for one of the nation’s strongest supporters of newborn screening.March of Dimes - March for Babies Web site
(Published April 15, 2010)
April 20, 2010
Join folks from Minnesota Hands & Voices for a discussion with medical professionals about "Next Steps for Families with Children Newly Diagnosed with Hearing Loss" from 6:00 - 8:30 p.m. on april 20th at the U of M Minneapolis Campus. Email to request a flyer at details-mnhv@lifetrackresources.org.(Published April 15, 2010)
April 12, 2010
The MDH Newborn Screening Program Advisory Committee will meet by teleconference and WebEx from 1:00 – 3:00 p.m. on April 13, 2010. This meeting is open to the public. If you would like to participate via WebEx please contact Tony Steyermark at tony.steyermark@state.mn.us by 3:00 p.m. Monday, April 12. You may attend in person. The WebEx meeting is hosted at the Public Health Laboratory. Upon your arrival please register with Security at the Freeman Building and you will be escorted to the meeting host site.Advisory Meeting Agenda (PDF: 8KB/1 page)
Advisory Meeting Booklet (PDF: 1.5MB/97 pages)
Powerpoint Slides from April 13, 2010 Advisory Committee Meeting (PDF: 236KB/9 pages)
Map to the Freeman Building(Published April 5, 2010)
(Updated April 12, 2010)
Back to Current Events
Updated Monday, 13-May-2013 10:18:45 CDTQuick Links
50th Anniversary of Newborn Screening
Fact Sheets
Disorders screened in MN
Specimen Collection Information
Newborn Screening Card Expiration Date
If you have questions or comments about this page, please contact Newborn Screening at: health.newbornscreening
@state.mn.us
