MinneStories is a project to record and preserve the stories of Minnesota families with conditions that can be identified by newborn screening. These stories of impact are shared so we may understand more about how newborn screening affects the lives of people all around us.
Rachel and Marsha discuss Rachel’s son, Cooper, and his diagnosis of MCAD deficiency found through newborn screening. Rachel shares her story of learning about her son’s diagnosis, a visit to the ER, and the opportunities that exist for him in spite of his diagnosis.
Shortly after she was born, a simple pulse oximetry screen prompted doctors to check Aria for a heart defect. Listen to her mother, Melia, and grandmother, Julie, talk about the strength Aria has shown and everything they went through as she fought for her life.
Partners in Hearing
Allison and Greg’s daughter, Elise, was diagnosed with hearing loss when she was five years old. Her parents share how ally organizations of the deaf and hard of hearing community worked with their family to secure a hearing aid for Elise.
Amazing Little Boy
During the midst of their son’s medical crisis, Jenni and Adam learn through newborn screening that he has a serious metabolic disorder. Listen to their story to hear them share their experience and how time has provided a new outlook of hope and perspective for their family.
Ashley and Jeremy share how taking things one day at a time has helped their family maintain a "normal life" after their son, Carson, was identified with cystic fibrosis through newborn screening.
Rae and Dr. Nelson describe their journey with her son's diagnosis of sickle cell disease and how it has shaped her into the advocate she has become today. Rae's son was found to have sickle cell disease on the newborn screen.
Greta Great Heart
Karin and Steve discuss the delivery of their daughter, Greta, who shortly after birth was found to have a life-threatening heart defect through newborn screening and the girl she has become today as a result of this experience.
Allison and Nate discuss their journey through their twin pregnancy and their son's diagnosis of severe hearing loss, which was found through newborn screening.
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Share Your Story
If you would like to share your story with us, please email us at firstname.lastname@example.org with your name, city, and two to three sentences about your newborn screening story.
We are so grateful to everyone who has shared their story with us. We hope these stories will help other families going through similar experiences and show the importance of newborn screening. We would also like to thank StoryCorps Legacy who inspired this project and trained us on how to capture these amazing stories.