Newborn Screening MinneStories - Minnesota Dept. of Health

MinneStories

MinneStories logo

Our mission is to record and share stories of families impacted by newborn screening to cultivate a community of shared experiences.

Our vision is to create awareness of the impact of public health through the power of storytelling to inspire hope and build community.

We are happy to have you join us on this journey!

Share your story

If you would like to share your story with us, please email us at health.newbornscreening@state.mn.us with your name, city, and two to three sentences about your newborn screening story.

Our stories

Blood spot screening

Hearing screening

Pulse ox

 

 

 

 

 



Story #8: Fierce AdvocateRae and Dr. Nelson

Blood spot screening | 4:45

Fierce Advocate Audio Text (PDF)

Rae and Dr. Nelson describe their journey with her son's diagnosis of sickle cell disease and how it has shaped her into the advocate she has become today. Rae's son was found to have sickle cell disease on the newborn screen.

Share this story on social media

Facebook iconTwitter icon

Story #7: Our Normal Ashley and Jeremey

Blood spot screening | 3:46

Our Normal Audio Text (PDF)

Ashley and Jeremy share how taking things one day at a time has helped their family maintain a "normal life" after their son, Carson, was identified with cystic fibrosis through newborn screening.

Share this story on social media

Facebook iconTwitter icon

Story #6: Partners in Hearing Allison and Greg

Hearing screening | 4:08

Partners in Hearing Audio Text (PDF)

Allison and Greg’s daughter, Elise, was diagnosed with hearing loss when she was five years old. Her parents share how ally organizations of the deaf and hard of hearing community worked with their family to secure a hearing aid for Elise.

Share this story on social media

Facebook iconTwitter icon

Story #5: Amazing Little Boy Jenni, Adam and their son Dylan

Blood spot screening | 4:52

Amazing Little Boy Audio Text (PDF)

During the midst of their son’s medical crisis, Jenni and Adam learn through newborn screening that he has a serious metabolic disorder. Listen to their story to hear them share their experience and how time has provided a new outlook of hope and perspective for their family.

Share this story on social media

Facebook iconTwitter icon

Story #4: Our ComedianAllison and Nate

Hearing screening | 4:44

Our Comedian Audio Text (PDF)

Allison and Nate discuss their journey through their twin pregnancy and their son's diagnosis of severe hearing loss, which was found through newborn screening.

Share this story on social media

Facebook iconTwitter icon

Story #3: Like LionsMelia and Julie with Aria

Pulse oximetry screening | 3:57

Like Lions Audio Text (PDF)

Shortly after she was born, a simple pulse oximetry screen prompted doctors to check Aria for a heart defect. Listen to her mother, Melia, and grandmother, Julie, talk about the strength Aria has shown and everything they went through as she fought for her life.

Share this story on social media

Facebook iconTwitter icon

Story #2: Greta Great HeartKarin and Steve

Pulse oximetry screening | 4:20

Greta Great Heart Audio Text (PDF)

Karin and Steve discuss the delivery of their daughter, Greta, who shortly after birth was found to have a life-threatening heart defect through newborn screening and the girl she has become today as a result of this experience.

Share this story on social media

Facebook iconTwitter icon

Story #1: Backstage PassRachel and Marsha

Blood spot screening | 3:14

Backstage Pass Audio Text (PDF)

Rachel and Marsha discuss Rachel’s son, Cooper, and his diagnosis of MCAD deficiency found through newborn screening. Rachel shares her story of learning about her son’s diagnosis, a visit to the ER, and the opportunities that exist for him in spite of his diagnosis.

Share this story on social media

Facebook iconTwitter icon

Subscribe to our stories

Subscribe to MinneStories for email notifications about new stories that are added and updates about this project.

Acknowledgements

We wish to extend our thanks to the families who have shared their stories with us about the impact of newborn screening to help cultivate a community of shared experiences. We would like to thank StoryCorps Legacy who inspired this project and trained us. This project would not be possible without the hard work & continued efforts of the students of The Institute of Production and Recording who help us to produce the stories that you listen to. Finally, we would like to thank our listeners for creating greater awareness about public health by sharing these stories.