Newborn Screening Program Information:
For more information on Minnesota’s newborn screening advisory committees, contact the Newborn Screening Program at 800-664-7772.
Advisory Committee on Heritable and Congenital Disorders
The Minnesota statute that mandates newborn screening also created the Minnesota Department of Health Advisory Committee on Heritable and Congenital Disorder (also known as the Newborn Screening Advisory Committee) that meets on a semi-annual basis.
Members of the Advisory Committee include:
- Parents and other consumers
- Primary care providers
- Clinician and researchers specializing in newborn disorders and disorders
- Genetic counselors
- Birth hospital representatives
- Newborn screening laboratory professionals
- Other experts as needed
One of the main purposes of the advisory committee is to discuss issues related to newborn screening including making informed recommendations to add new disorders to the newborn screening panel. Meetings are open to the public.
|Advisor||Category||Term End Date|
|Roshini Abraham||Newborn screening laboratory professionals||01/2020|
|Mark Bergeron||Clinician and researcher specializing in newborn diseases and disorders||01/2019|
|Susan Berry||Clinician and researcher specializing in newborn diseases and disorders||01/2020|
|Vikas Bhambhani||Clinicians and researchers specializing in newborn diseases and disorders||01/2019|
|Kristi Borowski||Clinicians and researchers specializing in newborn diseases and disorders||01/2020|
|Kristen Dummer||Clinician and researcher specializing in newborn diseases and disorders||01/2019|
|Sheyhan Gelle||Parents and other consumers||01/2020|
|Robert Jacobson||Primary care providers||01/2019|
|Courtney Jarboe||Other experts as needed||01/2020|
|Ed Jenkins||Parents and other consumers||01/2020|
|Steven Johnson||Parents and other consumers||01/2019|
|Amy Karger||Newborn screening laboratory professionals||01/2019|
|Terri Laguna||Clinicians and researchers specializing in newborn diseases and disorders||01/2020|
|Jan Larson||Parents and other consumers||01/2019|
|Julie Thompson Larson||Birth hospital representatives||01/2020|
|Kristin Loncorich||Birth hospital representatives||01/2019|
|Dietrich Matern||Newborn screening laboratory professionals||01/2020|
|Stephen Nelson||Clinicians and researchers specializing in newborn diseases and disorders||01/2019|
|Michael Nwaneri||Primary care providers||01/2019|
|Martha Overby||Other experts as needed||01/2019|
|Annamarie Saarinen||Other experts as needed||01/2019|
|Kiki Sarafoglou||Clinicians and researchers specializing in newborn diseases and disorders||01/2019|
|Emilee Scheid||Other experts as needed||01/2020|
|Kevin Sheridan||Clinicians and researchers specializing in newborn diseases and disorders||01/2020|
|Kathy Stagni||Parents and other consumers||01/2020|
|Renee Temme||Genetic counselors||01/2020|
|Jennifer Ward||Clinicians and researchers specializing in newborn diseases and disorders||01/2019|
New Advisor Orientation
New advisors need to complete a short orientation training. Returning advisors are welcome to review this training as well. The training reviews newborn screening at the national and state level, provides an overview of the newborn screening process in Minnesota, and describes the role of an advisor. Upon request, a closed captioned version of this training will be provided.
Newborn Hearing Screening Advisory Committee
The Minnesota statute that mandates newborn hearing screening also created a Minnesota Department of Health Newborn Hearing Screening Advisory committee that meets four times per year to discuss issues surrounding early hearing detection and intervention.
Members of the Newborn Hearing Advisory Committee include parents of children with a hearing loss, advocates with expertise in issues affecting people who are deaf and hard of hearing, health care providers, hospital representatives, and other medical and education experts. One of the main purposes of the advisory committee is to make informed recommendations for newborn hearing screening and hearing loss management. Meetings are open to the public.
Please email EHDI@health.state.mn.us with any questions or comments regarding the Newborn Hearing Screening Advisory Committee.