Newborn Screening Program Information: Advisory Committees - Minnesota Dept. of Health

Newborn Screening Program Information:
Advisory Committees

For more information on Minnesota's newborn screening advisory committees, contact the Newborn Screening Program at 800-664-7772.


On this page:

Advisory Committee on Heritable and Congenital Disorders

Open and Upcoming Appointments for Advisory Committees


Advisory Committee on Heritable and Congenital Disorders

The Advisory Committee on Heritable and Congenital Disorders, also called the Newborn Screening Advisory Committee (NSAC), provides advice and recommendations to the Minnesota Commissioner of Health concerning tests and treatments for disorders found in newborn children.

Authorizing legislation

If you have any questions, please contact the committee coordinators:

Maggie Dreon
Phone: (651) 201-5670
Email: maggie.dreon@state.mn.us

Sondra Rosendahl
Phone: (651) 201-5922
Email: sondra.rosendahl@state.mn.us


Recommendations from the Committee and Responses from the Commissioner

Spinal Muscular Atrophy

Pompe, Mucopolysaccharidosis type 1, and X-linked Adrenoleukodystrophy



Committee Membership

Members of the advisory committee shall include, but not be limited to, the following:

  • Parents and other consumers
  • Primary care providers
  • Clinician and researchers specializing in newborn disorders and disorders
  • Genetic counselors
  • Birth hospital representatives
  • Newborn screening laboratory professionals
  • Nutritionists
  • Other experts as needed

Meeting Agenda and Minutes

April 17, 2018

  • Agenda (PDF)
  • Minutes (PDF)

Upcoming meetings:

  • October 9, 2018

April 25, 2017

October 10, 2017

April 26, 2016

October 11, 2016

April 21, 2015

October 13, 2015


Newborn Hearing Screening Advisory Committee

The Newborn Hearing Screening Advisory Committee, also known as the Early Hearing Detection & Intervention (EHDI) Advisory Committee, meets four times per year to discuss issues surrounding early hearing detection and intervention. Members of the mandated advisory committee include parents of children with a hearing loss, advocates with expertise in issues affecting people who are deaf and hard of hearing, health care providers, hospital representatives, and other medical and education experts. One of the main purposes of the advisory committee is to make informed recommendations for newborn hearing screening and hearing loss management. Meetings are open to the public.

Authorizing legislation

Please email EHDI@health.state.mn.us with any questions or comments regarding the Advisory Committee on Newborn Hearing Screening.


Recommendations from the Committee and Responses from the Commissioner

Medical Guidelines for Primary Care and Medical Home Providers


Committee Membership

The commissioner of health shall appoint at least one member from each of the following groups with no less than two of the members being deaf or hard-of-hearing:

  • A representative from a consumer organization representing culturally deaf persons
  • A parent with a child with hearing loss representing a parent organization
  • A consumer from an organization representing oral communication options
  • A consumer from an organization representing cued speech communication options
  • An audiologist who has experience in evaluation and intervention of infants and young children
  • A speech-language pathologist who has experience in evaluation and intervention of  infants and young children
  • Two primary care providers who have experience in the care of infants and young children, one of which shall be a pediatrician
  • A representative from the early hearing detection intervention teams
  • A representative from the Department of Education resource center for the deaf and hard-of-hearing or the representative's designee
  • A representative of the Minnesota Commission Serving Deaf and Hard-of-Hearing People
  • A representative from the Department of Human Services Deaf and Hard-of-Hearing Services Division
  • One or more of the Part C coordinators from the Department of Education, the Department of Health, or the Department of Human Services or the department's designees
  • The Department of Health early hearing detection and intervention coordinators
  • Two birth hospital representatives from one rural and one urban hospital
  • A pediatric geneticist
  • An otolaryngologist
  • A representative from the Newborn Screening Advisory Committee under this subdivision
  • A representative of the Department of Education regional low-incidence facilitators

Meeting Agenda and Minutes

February 7, 2018

May 16, 2018

Upcoming meetings:

  • August 15, 2018
  • November 7, 2018

February 8, 2017

May 17, 2017

August 9, 2017

November 15, 2017

February 10, 2016

May 11, 2016

August 10, 2016

November 9, 2016

February 11, 2015

May 27, 2015

August 12, 2015

November 4, 2015

February 5, 2014

May 14, 2014

August 6, 2014

November 12, 2014

Open and Upcoming Appointments for Advisory Committees

Application Process to Become an Advisor

Below are the available vacancies:

  • Advisory Committee on Heritable and Congenital Disorders
    • No positions available at this time
  • Newborn Hearing Screening Advisory Committee
  • Open position:
    • A representative from the Department of Human Services Deaf and Hard-of-Hearing Services Division
  • On May 23, 2018, the Commissioner of Health will appoint the following people to the Newborn Hearing Screening Advisory Committee.

    • Laura Godfrey (end of term date: January 6, 2020), parent with a child with hearing loss representing a parent organization
    • Colleen Ireland (end of term date: January 6, 2020), representative from a rural birth hospital
    • Nathaniel Meuser-Herr (end of term date: January 6, 2020), representative from an urban birth hospital
    • Ingrid Aasan (end of term date: January 7, 2019), representative of the Department of Education regional low-incidence facilitator

Please visit Office of the Minnesota Secretary of State to submit an application.

If you would like to include a resume or curriculum vitae, please email it to open.appointments@state.mn.us immediately after you have submitted your application.

Terms of Appointment

Advisors are appointed to the committee by the Minnesota Commissioner of Health. Appointed advisors serve four-year terms and can reapply at the end of their term. Appointments may be renewed indefinitely, at the discretion of the Commissioner.

Selecting Advisors

Selection is based on review of the applications by a Steering Committee for the Advisory Committees. Final selection of appointed advisors is made by the Minnesota Commissioner of Health.