Education and Resources - Patient- and Family-Centered Care
Patient- and Family-Centered Care: The Essential Core of the Health Care Home
Presentation: Engaging Patients and Families in Redesign (PDF: 99KB/22 pages)
Jane Taylor, Ed.D., Improvement Advisor and Learning Designer
These family-centered care self-assessment tools are designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts and track progress toward family-centered care. These tools include:
Presentation: Engaging Patients and Families to Build a Health Care Home and Improve Quality (PDF: 2 MB/7 pages)
Beverley H. Johnson, Oct. 30, 2009
Institute for Family-Centered Care
This site includes many free downloadable materials to assist providers, patients and families in understanding patient- and family-centered care and how to implement these concepts into clinical practice, hospitals and communities.
- FAQ includes definitions, core concepts of patient- and family-centered care, suggestions for getting started, checklists and guidance on selecting and partnering with patients and advisers.
- Advancing the Practice of Patient and Family Centered Ambulatory Care: How to Get Started (PDF) includes six parts that cover the steps an organization can take to create partnerships with patients and families, assessment of governance and culture and practical suggestions for getting started.
- Information for Patients/Families includes the pediatric medical home family index and survey.
- Hospital Self-Assessment Inventory for Patient- and Family-Centered Care is from the American Hospital Association (in partnership with Institute for Family-Centered Care, Bethesda, Md.) and offers downloadable videos and PDFs.
- Minnesota Medical Home: Information for Families and Consumers includes information about the medical home, including assessment tools and information for families.
- Structure & Spark! Building Family-Professional Partnerships to Improve Care for Children with Special Health Needs (PDF)
Massachusetts advocacy groups, dedicated to children with special needs, provide an in-depth exploration of their experience partnering with professionals at all levels of care in order to influence the care that children with special needs and their families receive.
- This site includes materials and links that may assist youth and young adults with special health needs as they transition to all aspects of adult life, including health care, work and independence.