Newborn Screening Program Information: Advisory Committees - Minnesota Dept. of Health

Newborn Screening Program Information:
Advisory Committees

For more information on Minnesota's newborn screening advisory committees, contact the Newborn Screening Program at 800-664-7772.


On this page:

Advisory Committee on Heritable and Congenital Disorders (NSAC)

Open and Upcoming Appointments for Advisory Committees


Advisory Committee on Heritable and Congenital Disorders (NSAC)

The Advisory Committee on Heritable and Congenital Disorders, also called the Newborn Screening Advisory Committee (NSAC), provides advice and recommendations to the Minnesota Commissioner of Health concerning tests and treatments for disorders found in newborn children.

Authorizing legislation

If you have any questions, please contact the committee coordinators:

Maggie Dreon
Phone: (651) 201-5670
Email: maggie.dreon@state.mn.us

Sondra Rosendahl
Phone: (651) 201-5922
Email: sondra.rosendahl@state.mn.us


Recommendations from the NSAC Committee and Responses from the Commissioner

Spinal Muscular Atrophy

Pompe, Mucopolysaccharidosis type 1, and X-linked Adrenoleukodystrophy



NSAC Committee Membership

Members of the advisory committee shall include, but not be limited to, the following:

  • Parents and other consumers
  • Primary care providers
  • Clinician and researchers specializing in newborn disorders and disorders
  • Genetic counselors
  • Birth hospital representatives
  • Newborn screening laboratory professionals
  • Nutritionists
  • Other experts as needed

NSAC Meeting Agenda and Minutes


Newborn Hearing Screening Advisory Committee (NHSAC)

The Newborn Hearing Screening Advisory Committee, also known as the Early Hearing Detection & Intervention (EHDI) Advisory Committee, meets four times per year to discuss issues surrounding early hearing detection and intervention. Members of the mandated advisory committee include parents of children with a hearing loss, advocates with expertise in issues affecting people who are deaf and hard of hearing, health care providers, hospital representatives, and other medical and education experts. One of the main purposes of the advisory committee is to make informed recommendations for newborn hearing screening and hearing loss management. Meetings are open to the public.

Authorizing legislation

Please email EHDI@health.state.mn.us with any questions or comments regarding the Advisory Committee on Newborn Hearing Screening.


Recommendations from the NHSAC Committee and Responses from the Commissioner

Medical Guidelines for Primary Care and Medical Home Providers


NHSAC Committee Membership

The commissioner of health shall appoint at least one member from each of the following groups with no less than two of the members being deaf or hard-of-hearing:

  • A representative from a consumer organization representing culturally deaf persons
  • A parent with a child with hearing loss representing a parent organization
  • A consumer from an organization representing oral communication options
  • A consumer from an organization representing cued speech communication options
  • An audiologist who has experience in evaluation and intervention of infants and young children
  • A speech-language pathologist who has experience in evaluation and intervention of  infants and young children
  • Two primary care providers who have experience in the care of infants and young children, one of which shall be a pediatrician
  • A representative from the early hearing detection intervention teams
  • A representative from the Department of Education resource center for the deaf and hard-of-hearing or the representative's designee
  • A representative of the Minnesota Commission Serving Deaf and Hard-of-Hearing People
  • A representative from the Department of Human Services Deaf and Hard-of-Hearing Services Division
  • One or more of the Part C coordinators from the Department of Education, the Department of Health, or the Department of Human Services or the department's designees
  • The Department of Health early hearing detection and intervention coordinators
  • Two birth hospital representatives from one rural and one urban hospital
  • A pediatric geneticist
  • An otolaryngologist
  • A representative from the Newborn Screening Advisory Committee under this subdivision
  • A representative of the Department of Education regional low-incidence facilitators

Meeting Agenda and Minutes

February 20, 2019

  • Agenda, Feb 2019 (PDF)
  • Minutes, Feb 2019 (PDF)

May 15, 2019

August 21, 2019

  • Agenda, Aug 2019 (PDF)
  • Minutes, Aug 2019 (PDF)

November 20, 2019

  • Agenda, Nov 2019 (PDF)
  • Minutes, Nov 2019 (PDF)

February 7, 2018

May 16, 2018

August 15, 2018

November 7, 2018

Open and Upcoming Appointments for Advisory Committees

Advisory Committee on Heritable and Congenital Disorders

    Vacancies

    Currently there are no vacancies on the Advisory Committee on Heritable and Congenital Disorders.

    Upcoming Appointments

    Currently there are no upcoming appointments for the Advisory Committee on Heritable and Congenital Disorders.


Newborn Hearing Screening Advisory Committee

Vacancies

Below are current vacancies for the Newborn Hearing Screening Advisory Committee. (Not all terms have the same end dates to comply with Minnesota Statutes 15.059 subdivision 2.)

    Number of openings

    Category

    Term end date

    1

    A representative from the Department of Human Services Deaf and Hard of Hearing Services Division

    January 6, 2020

    1

    A Part C coordinator or designee from the Department of Education, the Department of Health, or the Department of Human Services

    January 6, 2020

    1

    A primary care provider with experience in the care of infants and young children

    January 2, 2023

    1

    A birth hospital representative from an urban hospital

    January 6, 2020

    1

    A representative from the deaf mentor program

    January 2, 2023

    1

    A representative of the Minnesota State Academy for the Deaf from the Minnesota State Academies staff

    January 2, 2023

    1

    Pediatric geneticist

    January 6, 2020

If interested, please visit the following website to apply for one of these open appointments:

Open Commissions and Appointments
Please include a cover letter, resume, and any other pertinent information you believe would be helpful in the selection process.

Upcoming Appointments

Currently there are no upcoming appointments for the Newborn Hearing Screening Advisory Committee.

Terms of Appointment

Advisors are appointed to the committee by the Minnesota Commissioner of Health. Appointed advisors serve four-year terms and can reapply at the end of their term. Appointments may be renewed indefinitely, at the discretion of the Commissioner.

Selecting Advisors

Selection is based on review of the applications by a Steering Committee for the Advisory Committees. Final selection of appointed advisors is made by the Minnesota Commissioner of Health.