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Long COVID

  • Long COVID Home
  • About Long COVID
  • Resources and Support
  • What We Are Doing
  • For Health Care Providers

Related Sites

  • COVID-19
  • Multisystem Inflammatory Syndrome in Children (MIS-C)
  • COVID-19 Research Studies in Minnesota
  • Managing Chronic Conditions During COVID-19
  • Health Care During COVID-19

Long COVID

  • Long COVID Home
  • About Long COVID
  • Resources and Support
  • What We Are Doing
  • For Health Care Providers

Related Sites

  • COVID-19
  • Multisystem Inflammatory Syndrome in Children (MIS-C)
  • COVID-19 Research Studies in Minnesota
  • Managing Chronic Conditions During COVID-19
  • Health Care During COVID-19
Contact Info
Long COVID program
health.longcovid@state.mn.us

Contact Info

Long COVID program
health.longcovid@state.mn.us

Long COVID Resources and Support

On this page
Medical care
Mental health support
If you struggle with daily tasks
Tools for managing symptoms at home
Resources for employees and employers
Resources for caregivers, schools, and more

If you are experiencing symptoms of long COVID, medical and social support may be available to you. Explore the lists below to learn more.

If you need help finding a doctor, mental health support, or insurance coverage, visit Minnesota Department of Human Services (DHS): Health care. For help filling out applications or enrolling in coverage, search the directory of MNsure-certified Navigators.

For culturally-specific assistance with COVID-19 issues, understanding the effects of COVID-19, or finding mental health resources, search the listing of COVID-19 Community Coordinators.

The U.S. Department of Health and Human Services (HHS) has published a guide of federal programs and recommendations: HHS: Services and Supports for Longer-Term Impacts of COVID-19 (PDF).

To access Minnesota assistance programs, visit mnbenefits.mn.gov.

Medical care

Start by talking with a doctor or health care provider about your symptoms. They may have options for care not listed below.

The Centers for Disease Control and Prevention (CDC) offer resources to help you prepare for your appointment:

  • Patient Tips: Healthcare Provider Appointments for Post-COVID Conditions
  • Healthcare Appointment Checklist for Post-COVID Conditions (PDF)
    • Español: Lista de verificación para las citas de atención médica por afecciones pos-COVID (PDF)
  • Preparing to Discuss Post-COVID Conditions with a Healthcare Provider (PDF)
    • Español: Cómo prepararse para hablar sobre afecciones pos-COVID con un proveedor de atención médica (PDF)

The following Minnesota health systems provide services for people with long COVID. This list may not include all options for care. Charges may apply. It is a good idea to contact your health insurance company before seeking care.

Note: This list is for informational purposes only. MDH does not endorse specific providers.

Allina Health/Courage Kenny Rehabilitation Institute: Post COVID rehabilitation services (multiple locations)

  • Provides holistic rehabilitation services and care coordination for people with ongoing symptoms. Telehealth and in-person options available.
  • Patients can be referred to the program from their primary care provider or a specialist. Check with your insurance provider to find out if a physician's order is needed.
  • To make an appointment: Call 612-262-7900.
    • Post-acute inpatient rehabilitation program: 612-863-4457 (adult services).
    • Post-COVID rehabilitation program: 612-262-7900 (all ages).
    • Post-COVID wellness program: 651-241-3820 (all ages).

Essentia Health: Long COVID-19 (multiple locations)

  • The Post COVID-19 Rehabilitation Program is offered at all Essentia locations.
  • Referrals preferred.
  • To make an appointment, call your local clinic.
  • For more information, contact Essentia's rehabilitation services director, Joan Jeanetta, at 218-786-5366 or joan.jeanetta@EssentiaHealth.org.

HealthPartners: Long-haul COVID Care (multiple locations)

  • Referrals are not needed, open to non-HealthPartners patients.
  • To make an appointment, call 952-967-7676 or schedule and office visit.
  • A customized treatment plan is tailored to each patient, ranging from pulmonary care to occupational therapy. Appointments can be inpatient, outpatient, or telehealth.

Hennepin Healthcare Post-COVID Care (Post-Acute COVID-19 Recovery Clinic, Minneapolis, Minnesota)

  • Providers can recommend and coordinate necessary medical specialties or services, such as cardiology, sleep medicine, psychiatry, physical or occupational therapy, and more.
  • To make an appointment, request a referral from your Hennepin Healthcare primary care provider. If you are not a Hennepin Healthcare patient, please have your provider fax a referral to 612-873-8437. Once a referral is made, a scheduler will reach out to you for an appointment.
  • If you have questions about the clinic or the services connected to it, please call 612-873-4037.

M Health Fairview: Long-Term COVID-19 Care (Twin Cities metro area)

  • Part of the University of Minnesota Medical School Department of Rehabilitation Medicine. Offers virtual appointments. Preference is given to patients who have ongoing symptoms that interfere with their daily lives.
  • Referrals may be required. For more information, visit the following pages or call:
    • Pediatric COVID-19 Clinic: 612-365-6777.
    • Adult Post-COVID-19 Clinic: 612-626-6688.
    • COVID-19 Rehabilitation Therapy Program: 612-273-6228.
    • ICU Survivorship Clinic: 651-471-1166.

Mayo Clinic Post-COVID Recovery (Rochester, Minnesota)

  • Includes the COVID Activity Rehabilitation Program (CARP), Post-COVID-19 Care Clinic, and Virtual 12-Week Treatment Program.
  • Provides treatment for a variety of post-COVID symptoms, including extreme fatigue, shortness of breath, headaches, dizziness, and weakness.
  • Accepts both current Mayo Clinic patients and nonpatients. You do not need a referral.
  • To make an appointment, call 507-284-4340 or visit Start your appointment request here.

Mental health support

If you are experiencing any kind of mental health crisis or just need someone to talk to, please reach out to any of the following resources:

  • For immediate medical assistance, dial 911.
  • National Suicide Prevention Lifeline: 1-800-273-TALK (8255).
  • Minnesota Crisis Text Line: text MN to 741741.
  • Minnesota Peer Support Connection Warmline: call or text 844-739-6369 (5 p.m. to 9 a.m.).
  • Visit Children’s Mental Health Crisis Contact Numbers for resources specific to children and young adults.

More resources can be found at Supporting Mental Well-being During COVID-19.

Some people with long COVID and related disabilities may face stigma. If you have experienced or witnessed discrimination or bias, call Minnesota's Discrimination Helpline at 1-833-454-0148 or submit the online form at Department of Human Rights: Report Discrimination. The helpline is staffed by investigators from the Minnesota Department of Human Rights. Translation/interpretation services are available.

If you struggle with daily tasks

Community-based Centers for Independent Living (CILs) serve people of all ages with all types of disabilities, and also those who may not identify as having a disability but struggle with daily tasks. Your local CIL may be able to coordinate services, arrange accessible transportation, locate and/or provide mobility equipment, and more. Use the directory to find your local CIL.

The Disability Information and Assistance Line (DIAL) can provide information about services you may be eligible for and connect you to them. DIAL can also can help you get vaccinated if long COVID is making it difficult for you to find vaccine sites, make or keep appointments, or find the information you need to make decisions.

To learn more, visit How ACL's Disability and Aging Networks Can Help People with Long COVID (PDF).

Need help applying for disability benefits? Advocates are available: DHS: Social Security Advocacy and SOAR.

Tools for managing symptoms at home

The following is not medical advice. Always consult with a health care provider before managing symptoms at home.

  • World Health Organization: Support for rehabilitation: Self-management after COVID-19-related illness
    Advice for adults who are recovering from COVID-19. Written by rehabilitation professionals in consultation with people recovering from long COVID. Includes tips for pacing and monitoring for post-exertional malaise.
  • National Health Service (England): Your COVID Recovery: I think I have long COVID
    Tips for resuming activities, managing your energy, and more.
  • MEAction: Pacing and management guide for ME/CFS (PDF)
    Tips for recognizing post-exertional malaise, monitoring symptoms, and prioritizing rest and activities.
  • Long COVID Kids: Supporting Children Living with Long COVID to Manage Their Energy with Pacing Penguins
    Information to help kids and parents understand and describe fatigue, plus a poster with graphics to help support recovery.

Resources for employees and employers

  • U.S. Equal Employment Opportunity Commission: What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws
    Up-to-date technical assistance questions and answers for employers and employees.
  • U.S. Department of Labor, Office of Disability: Coronavirus Resources: COVID-19 and Long COVID-19
    Information on job accommodations, returning to work, employee rights and benefits, and more.
  • Office of Disability Employment Policy Job Accommodation Network (JAN): Accommodating Employees with COVID-19-Related Symptoms
    Includes ideas for workplace accommodations. Employees and employers may also contact JAN for free, one-on-one consultation: 800-526-7234.
  • JAN: Supporting Employees with Long COVID: A Guide for Employers (PDF)
    Provides an overview, guidance, and frequently asked questions regarding long COVID and the workplace.
  • ADA Minnesota
    Provides technical assistance and expertise about ADA compliance and disability-related state and federal laws.
  • Minnesota RETAIN: a Resource for Workers Recovering from Illness or Injury
    For employees returning to work after illness. Minnesota Department of Employment and Economic Development (DEED).
  • Minnesota RETAIN: Retaining Employment and Talent After Injury/Illness Network
    For employers interested in working with a MN RETAIN Return to Work Case Manager.
  • U.S. Department of Health & Human Services (HHS): Guidance on “Long COVID” as a Disability Under the ADA, Section 504, and Section 1557
    Information on long COVID as a disability under the Americans with Disabilities Act (ADA).
  • Social Security Administration: Disability Benefits | How You Qualify

Resources for caregivers, schools, and more

Supporting someone with long COVID can be difficult. Learn more about coping and caring for yourself and loved ones at CDC: Caring for People with Post-COVID Conditions.

Children and youth with post-COVID conditions can experience challenges with concentration, memory, mental health, and/or physical activity. Accommodations may be needed to help them attend school, complete schoolwork, or perform usual activities.

School administrators, counselors, and nurses can work with families and health care professionals to provide extra time for tests, scheduled rest periods throughout the day, a modified class schedule, or similar accommodations. Adaptations should also be considered for activities outside of school, such as sports, clubs, scouting, etc.

Resources:

  • Long COVID under Section 504 and IDEA Resource to Support Children, Students, Educators, Schools, Service Providers, and Families (PDF)
    From the U.S. Department of Education’s Office for Civil Rights (OCR) and the Office of Special Education and Rehabilitative Services (OSERS).
  • National Association of School Nurses: Long COVID—The New “Invisible” Illness: How School Nurses Can Support the Nursing and Educational Teams for Student Success (PDF)
    Includes suggestions for assessments, plans, and accommodations.
  • Inside Higher Ed: Supporting Students with Long COVID: A Workbook for Disability Service Providers (PDF)
    Considerations for intake interviews and documentation.
  • Inside Higher Ed: Supporting Students with Long COVID (article)
  • Kennedy Krieger Institute: Supporting a Student with Long COVID (PDF)
    Considerations for educators.
  • American Academy of Pediatrics (AAP): Post-COVID-19 Conditions in Children and Adolescents
    For health care providers navigating follow-up care of infants, children, and adolescents after COVID-19.
  • AAP: COVID-19 Interim Guidance: Return to Sports and Physical Activity
    Considerations for returning to sports and physical activity.
  • Long COVID Kids: Supporting Children Living with Long COVID to Manage Their Energy with Pacing Penguins
    Information to help kids and parents understand and describe fatigue, plus a poster with graphics to help support recovery.
Tags
  • longcovid
Last Updated: 02/23/2023

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