Children and Youth with Special Health Needs (CYSHN)
- Birth Defects Monitoring and Analysis
- Early Hearing Detection and Intervention
- Follow Along Program (FAP)
- Longitudinal Follow-up for Newborn Screening Conditions
Information and Resources for:
About the Children and Youth with Special Health Needs Section
Our vision is to improve population health through building the capacity of all systems that serve families of children and youth with special health needs.
CYSHN programs provide state-level leadership and partner with families and other stakeholders to achieve our vision with emphasis on Quality Improvement in the following areas:
- Family-Centered Care
- Cultural Responsiveness
- Best practices
- Proactive and preventive investment
- Data-driven decision-making
Who Do We Serve?
One in every five Minnesota families with children has at least one child with a special health need. Estimates of children with special health needs in Minnesota range from 160,000 to 200,000.
Children and youth with special health needs are those who have, or who are at increased risk for, a chronic physical, developmental, behavioral, or emotional condition. They also require health and related services of a type or amount beyond that generally required.
We recognize that all children and youth with special health needs, regardless of their condition, require a well-functioning, community-based system of resources to reach their full potential.
In order to enhance positive outcomes for children and youth with special health needs and their families, CYSHN activities in Minnesota include:
- Education: Providing health and related information about specialized services to families of children with or at risk for chronic illnesses and disabilities; and identifying and promoting evidence-based interventions for children and youth with special health needs.
- Follow-Up: Assuring linkage of families with resources and services whose infants have been diagnosed with metabolic or endocrine conditions, infants with confirmed hearing loss, and infants identified with a birth defect.
- Community Partnerships: Technical assistance, specialized consultation, and support for primary care providers, specialty care providers, local public health nurses, and other community agencies who provide services to children and youth with special health needs.
- Public Policy: Engage in the development, coordination, and support of state and local systems for children with special health needs. These systems include Minnesota's Interagency Early Intervention System (Part C) and Minnesota's System of Interagency Coordination (MNSIC). Serve in an advisory capacity to policy-making bodies to assure the interests of children with special health needs are considered.
- Surveillance: Monitor and analyze data of selected populations to identify trends, adequacy and availability of services, and underlying causes of birth defects and conditions identified through newborn screening; monitor the effectiveness of interventions and document health outcomes of children identified with a newborn screening condition or birth defect.