Children and Youth with Special Health Needs (CYSHN)
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Information and Resources for:
Contact Info
Children and Youth with Special Health Needs
651-201-3650
1-800-728-5420 (toll-free)
Contact Info
Children and Youth with Special Health Needs
651-201-3650
1-800-728-5420 (toll-free)
Newborn and Child Longitudinal Follow-up
Longitudinal Follow-up uses a systems-based approach to understand and promote health and well-being for children with conditions included in Minnesota Newborn Screening and their families.
Longitudinal Follow-up collaborates with parents, health care providers, educators, local public health nurses, and others statewide to:
- Connect children with a confirmed diagnosis of a newborn screening condition and their families to useful resources, services, and supports of interest through community partnerships (for example, family support organizations and/or local public health). Resources may be financial, insurance, transportation, food, childcare, home visiting, early intervention, educational supports, and more.
- Gather and analyze relevant data to:
- Ensure children with newborn screening conditions and their families receive helpful information, community resources, and services of interest.
- Understand outcomes during childhood (less than 18 years old) to aid in evaluation of the benefits of early identification through newborn screening.
- Identify gaps and make improvements.
- Inform policy and decision-making through a health equity perspective.
For more information:
- Newborn Screening in Minnesota
- Minnesota's Early Hearing Detection and Intervention program
- Early Hearing Detection and Intervention Parent Letter and FAQ
- Diseases and Conditions Identified in Children
- Considerations for Public Health Newborn Screening Follow-up Protocols for X-ALD, MPS I, and Pompe Disease
- Congenital Heart Disease Resources Brochure
- Information and Resources for Families