Longitudinal Follow-up for Newborn Screening Conditions

Longitudinal Follow-up uses a systems-based approach to understand and promote health and well-being for children with conditions included in Minnesota Newborn Screening and their families.

Longitudinal Follow-up collaborates with parents, health care providers, educators, local public health nurses, and others statewide to:

• Connect children with a confirmed diagnosis of a newborn screening condition and their families to useful resources, services, and supports of interest through community partnerships (for example, family support organizations and/or local public health). Resources may be financial, insurance, transportation, food, childcare, home visiting, early intervention, educational supports, and more.
• Gather and analyze relevant data to:
  • Ensure children with newborn screening conditions and their families receive helpful information, community resources, and services of interest.
  • Understand outcomes during childhood (less than 18 years old) to aid in evaluation of the benefits of early identification through newborn screening.
  • Identify gaps and make improvements.
• Inform policy and decision-making through a health equity perspective.

For more information:

• Congenital Heart Disease Resources Brochure
• Considerations for Public Health Newborn Screening Follow-up Protocols for X-ALD, MPS I, and Pompe Disease
• Diseases and Conditions Identified in Children
• Early Hearing Detection and Intervention Parent Letter and FAQ
• Information and Resources for Families
• Longitudinal Follow up Fact Sheet (PDF)
• Minnesota's Early Hearing Detection and Intervention program
• Newborn Screening in Minnesota
• Questions & Answers about Data Collection
   

  Other languages: Questions & Answers about Data Collection 

  • Questions & Answers about Data Collection (Amharic)
  • Questions & Answers about Data Collection (French)
  • Questions & Answers about Data Collection (Hmong)
  • Questions & Answers about Data Collection (Karen)
  • Questions & Answers about Data Collection (Oromo)
  • Questions & Answers about Data Collection (Pashto)
  • Questions & Answers about Data Collection (Russian)
  • Questions & Answers about Data Collection (Somali)
  • Questions & Answers about Data Collection (Spanish)