Children and Youth with Special Health Needs (CYSHN)
Programs
- Birth Defects Monitoring and Analysis
- Early Hearing Detection and Intervention
- Follow Along Program
- Longitudinal Follow-up for Newborn Screening Conditions
Related Sites
Contact Info
Newborn Screening Propel
Ku akhri xogtaan Af-Soomaali: Newborn Screening Propel_Somali (PDF)
Lea esta información en Español: Newborn Screening Propel_Spanish (PDF)
Newborn Screening (NBS) Propel aims to improve the newborn screening system for all Minnesota infants and their families. MDH and an external partner implemented focus groups and administered a survey to learn more about parents’ and caregivers’ experiences with the newborn screening system. Parents and caregivers of infants and children diagnosed with congenital cytomegalovirus (CMV) through newborn screening were invited to participate. Providers working with infants and children with congenital CMV were also invited to provide input during key informant interviews.
Survey collection has concluded. However, if you received a survey and would still like to provide feedback, please contact health.cyshn@state.mn.us. Family focus groups and key informant interviews with providers have also concluded. Thank you to all who participated!
This project is being administered through federal funding from the Division of Services for Children with Special Health Needs NBS Propel Awards.
Survey collection has concluded. However, if you received a survey and would still like to provide feedback, please contact health.cyshn@state.mn.us.
The MDH Newborn Screening Program collects information from hospitals and clinics for infants and children diagnosed with over 60 conditions included on the newborn screening panel, including congenital CMV. We use the information that we gather to know if children and their families get the support and resources they want and need.
For more information on data collection, please refer to Questions & Answers about Data Collection: Long-term follow-up for children with newborn screening conditions.
Who do I contact with questions?
Please contact health.cyshn@state.mn.us or call 651-201-3650 for more information.
Funding acknowledgement
The Health Resources and Services Administration (HRSA), Department of Health and Human Services (HHS) provided financial support for this project. The award provided 95% of total costs and totaled $345,000. The contents are those of the author. They may not reflect the policies of HRSA, HHS, or the U.S. Government.